Privacy Policy

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This website is operated by Action for Pulmonary Fibrosis (APF). We take the security of your personal data seriously and ensure that it is kept securely, in accordance with requirements of the current data protection regulations.

We will never share your data with any outside body. In some cases, minimal data required (your email address) to send you information will be provided to an agency working with APF who fulfil some communications for us. It will be used for that purpose only, kept secure by them, and the list deleted once the communication is sent.

Our online forms are protected by encryption and our website is secured. We take appropriate measures to ensure that personal information disclosed to us is kept secure, accurate and up to date and kept only as long as necessary and for the purposes for which it is provided.
We will remove your data if you ask us to. You can remove your data at any time by contacting us at the email address indicated below or use the Unsubscribe link on the online newsletter.

Your data will be used only:

  • To provide you with newsletters and updates on charity activities
    From time to time to ask patients/carers to contribute their views when the charity is gathering evidence about the experience of living with pulmonary fibrosis
    You may also be informed about consultations taking place relating to the care of patients with pulmonary fibrosis
    To analyse the usage of our website through Google Analytics and

Your Consent

By providing us with your personal data, including any sensitive personal data, you consent to the collection and use of this information in accordance with the purposes described above and this privacy statement.

You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected. If you wish to receive a copy of this information, please contact us at the email indicated below.

Contact us at

Privacy statement last updated May 2018.