News

The last ILD_INN APF Study session this year

Geraldine Burge ILD Specialist Nurse #ILD_INN and Roxane Caplan #ActionPFCharity are in Reading today for the last of this year’s ILD study sessions with the Cardiac and Respiratory Specialist Service Team. #IPF #IPFAwareness

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Global Adventure Challenges – Black Friday offer

Many of our supporters like to challenge themselves, and some have used this organisation in the past, so we thought we’d pass on this offer from Global Adventure Challenges: Black Friday 2017 was an amazing success with over 150 people signing up to take on a challenge of a lifetime to support a charity close to […]

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Bolton Support Group on Bolton FM radio

Congratulations to the Bolton Support group who were featured on Bolton FM last night. Listen online to members of the support group and Lorna the National Support Group Co-ordinator at http://www.boltonfm.com/schedule/wednesday?Listen-Again=1 Bolton FM

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#EUIPFF at the European Parliament

APF Chair Steve Jones today presented the findings of the EU-IPFF benchmark study on IPF care across Europe at the European Parliament today. The study highlighted problems of late diagnosis, Lack of access to pulmonary rehabilitation and fragmented palliative care. APF is a founder member of EU-IPFF (the European Federation of IPF patient organisations)

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Christmas Cards for Sale – reminder

Following the death of a great friend from Pulmonary Fibrosis in November 2017, Camilla Inglis’s’ 14 year old son, Wilfred, painted ‘Chilly Robin’ for her as a memory.  Camilla decided to have the painting printed onto Christmas Cards to raise money for APF “it was my friend’s wish that APF would benefit in her memory”. […]

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Report from Amanda Goodwin attending the ICLAF conference in California

ICLAF Travel Award Report – Amanda Goodwin Thank you, Action for Pulmonary Fibrosis, for this travel fellowship which allowed me to attend ICLAF 2018 in Asilomar, California. ICLAF was a fantastic conference, and will have a positive impact on myself personally and my research for years to come. The ICLAF program included a wide variety […]

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Groups continue to raise awareness with their local MPs.

Local Labour MP for Ashton- Under- Lyne, Angela Rayner, dropped in to visit the Tameside PF Support Group at their last meeting. Clive Green, the group organiser, met Angela whilst she was doing her door to door canvassing in spring and he asked her to drop in and visit the group. Well, she kept to […]

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AI helping to diagnose IPF from CT Scans

Dr Simon Walsh has developed algorithms to assist in the diagnosis of IPF from CT Scans. Future research might help predict the progression of the disease. Research is at the centre of all we do. Reported in The Times.

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APF Patient Information Day at Doncaster

Great turn out for the APF Patient Information Day at Doncaster today. Excellent talks this morning from Dr Simon Hart (Hull), Dr Steve Bianchi (Sheffield) and Dr Paul Beirne Leeds). More this afternoon   Photo is of Dr Paul Beirne

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Patient Information Day. Monday 22nd October. Holiday Inn, Doncaster

Yorkshire Patient Information Day Monday 22nd October Holiday Inn Doncaster A1 (M), Jct.36   PROGRAMME   1000 Registration and coffee Opening Session 1030 Welcome Steve Jones, Chair APF 1040 Patient stories   Understanding Pulmonary Fibrosis 1100 What is pulmonary fibrosis? Simon Hart, Hull 1130 How is pulmonary fibrosis diagnosed and monitored? Paul Beirne, Leeds 12.00 […]

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