News

Groups continue to raise awareness with their local MPs

Local Labour MP for Ashton- Under- Lyne, Angela Rayner, dropped in to visit the Tameside PF Support Group at their last meeting. Clive Green, the group organiser, met Angela whilst she was doing her door to door canvassing in spring and he asked her to drop in and visit the group. Well, she kept to […]

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ILD/INN Annual Conference in Birmingham

APF Chair, Steve Jones is delighted to be talking at the ILD/INN annual conference in Birmingham today about the Challenges  facing the ILD Community. Photo – Steve with ILD/INN Chair Anne-Marie Russell

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Drugs leaflets for Pirfenidone and Nintedanib

Two new drugs leaflets have been produced by the ILD-INN in conjunction with Action for Pulmonary Fibrosis designed for both medical professionals and patients. The leaflets have been written to help you understand more about the drugs. They will tell you what they are, how they work, how they are used to treat lung conditions […]

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Pulmonary Fibrosis Clinical Trials directory – IPF, PF, EU-IPFF

CLINICAL TRIAL FINDER. Just released, as part of our work with the EU-IPFF we are pleased to announce that there is now an easy to use guide to see what clinical trials are available worldwide. The route to these trials will be via your consultant, you must discuss all aspects of your participation or interest […]

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Launch of West Bromwich support group – IPF – Support

13th September saw the launch of the new “Pulmonary Fibrosis Action Group” held at West Bromwich Library, High Street, West Bromwich. There was a good turnout for the first meeting, around 24 patients and carers attended. Lorna McLauchlan the Support Group Coordinator for Action for Pulmonary Fibrosis attended to support the group and gave a […]

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Tamsin and Archie raise £500 for APF – IPF

Tamsin Watts and her son Archie took part in the Great North Run to raise funds for APF in memory of Archie’s late Grandad.  Never expecting to get places when they applied, the pair had great fun despite not putting in any training. Archie completed in 1 hour 47 minutes and Tamsin just over half […]

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Colchester Zoo Stampede Run – Sam’s first half marathon – IPF

Sarah Pamphilon’s mum was diagnosed with IPF three years ago. Cousin Sam wanted to raise money for research by entering the Colchester Zoo Stampede Half Marathon on 8th September, his first half marathon.  Despite a knee injury the week before the run, he completed the course in 2 hours 19  minutes and more than doubled […]

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In memory of Garry

A 67 mile walk kicks off on Tuesday, and we are all very excited. It’s going to be a great way to mark IPF awareness week & has really brought our family together to remember my Dad. We will be spreading the word on our travels about IPF over the 3 days until we arrive at […]

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New European Guidelines for the diagnosis of IPF

APF welcome the announcement on the 5th September of new guidelines for the diagnosis of IPF by the European Respiratory Society. Read the guidelines here The main points: For all patients, a detailed history should be taken of both medication use and environmental exposures and serological testing should be performed to exclude connective tissue disease as a potential […]

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