It’s #RareDiseaseDay 2019. Contrary to public perception pulmonary fibrosis is not a rare disease. It’s under-resourced, under-recognised and often forgotten. Over 6,000 people are diagnosed a year and numbers are increasing. Read more
Choral Diversity performed a Christmas Concert, and raised a fantastic £900 for Action for Pulmonary Fibrosis. Melissa Hippard has IPF, and her very talented daughter Beth Melling is the founder and musical director of the Hereford and Ludlow based choir Choral Diversity -pictured above. We’d like to thank Beth and all the choir members for […]
Quoting Harriet “Well today I completed challenge 2, 40k Stonehenge Stomp! It was exhausting but I did so much better than I thought I would, I managed to run the majority of it apart from the steep hills. I did it in 4hrs 47 mins which I was really pleased with. And the weather didn’t […]
Wendy Dickinson and brother Philip Taylor The children of former Nottingham Forest and Derby County legend Peter Taylor have announced they are donating the royalties from the publication of a book written by their father about his career with Brian Clough to medical research. The book will be available on Thursday 24 January 2019. Peter […]
HYWEL DDA Pulmonary Fibrosis Support Group meeting on 19th December, at 3pm till 5pm. It’s at St Marys Catholic Church, 2 Union Street, Carmarthen, SA31 3DE All welcome.
The Bedford Pulmonary Fibrosis support group is meeting on Tuesday 18th December 2.30 to 4.00pm at the Jubilation Centre – the Biddenham Bell Ringers will be coming.
Looks like they had a wonderful Christmas Party. Next years meetings up to April will be held at Johnson’s Garden Centre, Boston on the 1st Friday of every month 1.30pm for a coffee, cake and chat. Merry Christmas everyone. To find a support group near you – click here
Published by: Sabrina Bajwah, Joanna M. Davies, Hanan Tanash, David C. Currow, Adejoke O. Oluyase, Magnus Ekström European Respiratory Journal 2018 52: 1801278; DOI: 10.1183/13993003.01278-2018 Abstract Safety concerns are a barrier to prescribing benzodiazepines (BDZs) and opioids in interstitial lung disease (ILD). We therefore examined the association of BDZs and opioids on risk of admission to […]
Action for Pulmonary Fibrosis was delighted that the British Thoracic Society (BTS) selected Dr Marlies Wijsenbeek of the University of Rotterdam as the first APF speaker at the Interstitial Lung Disease Symposium at its prestigious Winter Meeting on 7th December. Dr Wijsenbeek spoke to an audience of over 200 leading consultants and scientists on “Optimising […]
Harriet Lyons lost her step father, Magnus (Mark) in October this year, five years after a diagnosis of Pulmonary Fibrosis in 2013 followed by cancer in 2017. But Mark battled through, baffling doctors with his enthusiasm, optimism and strength. Harriet has set herself the unenviable task of completing one challenge a month for a year […]