Action for Pulmonary Fibrosis has led the largest ever survey of people living with idiopathic pulmonary fibrosis (IPF) – an incurable lung disease which kills 6,000 people each year – in the UK has discovered high levels of misdiagnosis. The report, Giving Patients a Voice has been published today (12 March 2019). What did the report find? More than […]
American Thoracic Society (ATS) Travel Fellowships Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2019 in Dallas, Texas. The awards of £1000 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher […]
It’s #RareDiseaseDay 2019. Contrary to public perception pulmonary fibrosis is not a rare disease. It’s under-resourced, under-recognised and often forgotten. Over 6,000 people are diagnosed a year and numbers are increasing. Read more
Choral Diversity performed a Christmas Concert, and raised a fantastic £900 for Action for Pulmonary Fibrosis. Melissa Hippard has IPF, and her very talented daughter Beth Melling is the founder and musical director of the Hereford and Ludlow based choir Choral Diversity -pictured above. We’d like to thank Beth and all the choir members for […]
Quoting Harriet “Well today I completed challenge 2, 40k Stonehenge Stomp! It was exhausting but I did so much better than I thought I would, I managed to run the majority of it apart from the steep hills. I did it in 4hrs 47 mins which I was really pleased with. And the weather didn’t […]
Wendy Dickinson and brother Philip Taylor The children of former Nottingham Forest and Derby County legend Peter Taylor have announced they are donating the royalties from the publication of a book written by their father about his career with Brian Clough to medical research. The book will be available on Thursday 24 January 2019. Peter […]
HYWEL DDA Pulmonary Fibrosis Support Group meeting on 19th December, at 3pm till 5pm. It’s at St Marys Catholic Church, 2 Union Street, Carmarthen, SA31 3DE All welcome.
The Bedford Pulmonary Fibrosis support group is meeting on Tuesday 18th December 2.30 to 4.00pm at the Jubilation Centre – the Biddenham Bell Ringers will be coming.
Looks like they had a wonderful Christmas Party. Next years meetings up to April will be held at Johnson’s Garden Centre, Boston on the 1st Friday of every month 1.30pm for a coffee, cake and chat. Merry Christmas everyone. To find a support group near you – click here
Published by: Sabrina Bajwah, Joanna M. Davies, Hanan Tanash, David C. Currow, Adejoke O. Oluyase, Magnus Ekström European Respiratory Journal 2018 52: 1801278; DOI: 10.1183/13993003.01278-2018 Abstract Safety concerns are a barrier to prescribing benzodiazepines (BDZs) and opioids in interstitial lung disease (ILD). We therefore examined the association of BDZs and opioids on risk of admission to […]