It’s IPF Week this week and people from all over the country are getting involved and blowing bubbles. Blowing bubbles is the symbol of this year’s IPF World Week – it is to show solidarity and support for those with pulmonary fibrosis and to demonstrate how difficult it can be to draw the breath needed […]
A new pulmonary fibrosis support group was launched last week in Wessex and Action for Pulmonary Fibrosis Chairman, Mike Bray, gave a presentation at the launch which was held at Eastleigh. Mike talked about his experiences as a patient and about the charity aims and hopes for the future.
What a year we have had! We set out early in 2013 to establish Action for Pulmonary Fibrosis as a new charity focusing on idiopathic pulmonary fibrosis with the aims of raising awareness of this devastating disease, helping IPF patients and their families and raising funds for research. By the summer of last year we […]
Action for Pulmonary Fibrosis had a strong presence at the annual conference of The Primary Care Respiratory Society over the weekend of Sept 26/27. We had a stand in the exhibition area and our delegate, trustee Wendy Dickinson, was able to talk to many of the delegates about IPF and about the charity.
This week a very successful IPF awareness day was held in the University Hospital of South Manchester led by the Manchester support group. There were two stands with leaflets, postcards and cakes and visitors gave donations – about £190 was raised!
This year’s IPF World Week starts this Sunday on 28 September to 4 October. Idiopathic Pulmonary Fibrosis World Week was created in 2012 as an initiative to inform people around the globe that Idiopathic Pulmonary Fibrosis (IPF) is a rare and poorly understood chronic and ultimately fatal lung disease. Each year, around 35,000 people in […]
A very successful training day for interstitial lung disease nurse specialists and trainees was held in Birmingham on 15 September. Over 50 nurses attended and the feedback was excellent. Delegates left exhausted but enthused!
Yesterday two of our amazing fundraisers ran a charity stall at Huddersfield Open Market – and it was a huge success!
Land’s End to Bleasby in Nottinghamshire. Not the usual challenge, but a long journey all the same. 400 miles in 4 days to raise money for Action for Pulmonary Fibrosis, a charity aimed at improving the lives of patients who suffer from a progressive disease leading to severe breathlessness and cough making even the simple […]