News

Christmas Cards for Sale – reminder

Following the death of a great friend from Pulmonary Fibrosis in November 2017, Camilla Inglis’s’ 14 year old son, Wilfred, painted ‘Chilly Robin’ for her as a memory.  Camilla decided to have the painting printed onto Christmas Cards to raise money for APF “it was my friend’s wish that APF would benefit in her memory”. […]

Continue reading »

Report from Amanda Goodwin attending the ICLAF conference in California

ICLAF Travel Award Report – Amanda Goodwin Thank you, Action for Pulmonary Fibrosis, for this travel fellowship which allowed me to attend ICLAF 2018 in Asilomar, California. ICLAF was a fantastic conference, and will have a positive impact on myself personally and my research for years to come. The ICLAF program included a wide variety […]

Continue reading »

Groups continue to raise awareness with their local MPs.

Local Labour MP for Ashton- Under- Lyne, Angela Rayner, dropped in to visit the Tameside PF Support Group at their last meeting. Clive Green, the group organiser, met Angela whilst she was doing her door to door canvassing in spring and he asked her to drop in and visit the group. Well, she kept to […]

Continue reading »

AI helping to diagnose IPF from CT Scans

Dr Simon Walsh has developed algorithms to assist in the diagnosis of IPF from CT Scans. Future research might help predict the progression of the disease. Research is at the centre of all we do. Reported in The Times.

Continue reading »

APF Patient Information Day at Doncaster

Great turn out for the APF Patient Information Day at Doncaster today. Excellent talks this morning from Dr Simon Hart (Hull), Dr Steve Bianchi (Sheffield) and Dr Paul Beirne Leeds). More this afternoon   Photo is of Dr Paul Beirne

Continue reading »

Patient Information Day. Monday 22nd October. Holiday Inn, Doncaster

Yorkshire Patient Information Day Monday 22nd October Holiday Inn Doncaster A1 (M), Jct.36   PROGRAMME   1000 Registration and coffee Opening Session 1030 Welcome Steve Jones, Chair APF 1040 Patient stories   Understanding Pulmonary Fibrosis 1100 What is pulmonary fibrosis? Simon Hart, Hull 1130 How is pulmonary fibrosis diagnosed and monitored? Paul Beirne, Leeds 12.00 […]

Continue reading »

Sarah ran the Cardiff Half Marathon

Sarah Messer, the daughter of former Newport GP Dr Denis Morgan who died of Idiopathic Pulmonary Fibrosis in 2017, ran the Cardiff Half Marathon last weekend in his memory. It was her first half marathon and she has so far raised the staggering amount of £2540 for Action for Pulmonary Fibrosis. The funds are in aid […]

Continue reading »

Wiltshire Support Group launch

The Wiltshire Pulmonary Fibrosis Support Group are having their first meeting on 12th October. Patients, relatives, friends and carers all welcome. At their first meeting there will be a talk on breathlessness and anxiety management presented by the Respiratory Occupational Therapist. The meeting will be held at Chippenham Community Hospital in the Wessex Room between […]

Continue reading »

IPF and Wyre Forest Support Group on BBC Hereford and Worcester Radio

Wyre Forest PF Support Group organiser Elaine Ball will be interviewed live by the Double Sony award winning radio broadcaster Malcolm Boyden on BBC Hereford and Worcester on Tuesday 16th   October at 11.00am. Raising awareness of the effects of Pulmonary Fibrosis and announcing the new Wyre Forest Pulmonary Fibrosis Support Group on 23rd October. Listen […]

Continue reading »