Nintedanib, an anti-fibrotic drug used to slow progression of idiopathic pulmonary fibrosis (IPF) has been shown to work for many other types of progressive pulmonary fibrosis. The results of a 15 country clinical trial were announced today at the European Respiratory Society (ERS) Congress in Madrid. Scientists found that lung function for patients who took […]
Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ERS International Congress in Madrid, 28th September to 2nd October 2019. The awards of £750 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher who […]
Action for Pulmonary Fibrosis (APF) was set up in 2013 by a group of patients, family members and healthcare professionals to provide support for patients and families. We are now the largest dedicated UK charity supporting families and funding research into the causes and treatment of pulmonary fibrosis. Being told you have pulmonary fibrosis is […]
We need your help. Join our ‘Listen To Our Lungs’ September campaign toraise awareness of pulmonary fibrosis during Global Pulmonary Fibrosis Awareness Month and IPF World Week. I’m Louise Wright, new CEO at Action for Pulmonary Fibrosis (APF) and it’s a pleasure to be in touch and introduce you to APF’s first campaign aimed at […]
Denbighshire Pulmonary Fibrosis Support Group will be holding their first new support group on 19th June at 1.00pm. The group organiser is Jaime Ashton and can be contacted on 07717 130796 email Venue: Trefnant Village Hall, Trefnant, Denbighshire LL16 5UG. Anyone affected by Pulmonary Fibrosis is warmly welcome including family, carers and friends. Please […]
Action for Pulmonary Fibrosis is co-operating with the University of East Anglia (UEA) on a research study on Idiopathic Pulmonary Fibrosis. As part of the overall study, there is a PhD research opportunity at UEA to study novel methods of patient recruitment for multi-centre clinical trials. Further information is available at: FindAPhD: https://www.findaphd.com/phds/project/design-and-efficient-conduct-of-multi-centre-trials-in-pulmonary-fibrosis-using-novel-methods-of-patient-recruitment-in-partnership-with-patient-and-public-groups-wilsonu19med/?p109855 Euraxess: https://euraxess.ec.europa.eu/jobs/411048
Action for Pulmonary Fibrosis is organizing a talk on lung transplantation for IPF patients and carers. The talk will be given by Dr Caroline Patterson, consultant transplant physician, Royal Papworth Hospital. The meeting will take place on 6th June (1400-1600) at Haslingfield Village Hall, New Road, Haslingfield, Cambridge CB23 1JP. If you are interested please […]
As a charity we are working hard to get national media coverage. We’re so delighted to be featured in today’s Daily Express raising national awareness of familial IPF and pulmonary fibrosis, it’s not currently available online so pick up a copy today!
Please note that the meeting of the support group at Guy’s Hospital has been brought forward from the 9th May to the 2nd May. This is because of room availability. For further details on the support group click here
Sometimes it can help to hear how others have learnt to live with IPF. Watch the inspiring stories of people living with the disease, including their challenges and triumphs. Produced by Boehringer Ingelheim, enabled by Action for Pulmonary Fibrosis. See the stories here.