Royal Stoke University Hospital have developed an app for their IPF patients. Its 320 patients will be able to download myIPFcheck onto their mobile devices to tell their consultants detailed changes in their condition including breath or blood test results and drug side-effects.
The JustGiving Awards return this September to give recognition to amazing fundraisers over the past year. Do you want to nominate an Action for Pulmonary Fibrosis fundraiser for the JustGiving 2015 awards? Do you know an amazing fundraiser who deserves recognition?
On May 27 at 2pm ET Canadian Pulmonary Fibrosis Foundation and Ward Health will host an online Q and A on the global burden of Pulmonary Fibrosis. An expert panel of respondents will answer questions about the challenges of: early and accurate diagnosis; current treatment options and the prospects for newer more effective treatments; prevalence […]
The Ribblesdale British Caravanners Club presented a fantastic cheque for £3700 to us at the Manchester IPF Patient Awareness Day last weekend. Allan Lancaster, a former patient of one of our trustees Annette Duck says: “Each year a charity is nominated at the AGM and this year we chose Action for Pulmonary Fibrosis.
Three of our fantastic fundraisers are test running their Toy Story costume at the Silverstone half-marathon on Sunday in their attempt to break a Guinness World Record at the London Marathon for fastest marathon for 3 people within one 3-person costume. Laura Jones is raising money and awareness for Action for Pulmonary Fibrosis in memory of […]
Healthcare at Home is establishing an independent Patient Council to give patients a voice and opportunity to comment on the business’ decision making. This is a great opportunity for you, as a pulmonary fibrosis patient, to have your say.
Action for Pulmonary Fibrosis has signed up to TrekFest 2015 – an exciting and demanding trekking challenge in the Beacons and the Peaks.
Action for Pulmonary Fibrosis awarding travel grants to researchers for American Thoracic Society (ATS) 2015
Action for Pulmonary Fibrosis is pleased to announce that we will be awarding travel grants for researchers attending the American Thoracic Society international conference in May 2015. The ATS is in Denver, Colorado and takes place between May 15th and May 20th 2015.
The first Nottingham Pulmonary Fibrosis support group meeting took place today at Nottingham Forest Football Ground. The event was a huge success with over 100 people attending including our Chairman, Mike Bray and trustees Dr Gisli Jenkins, Karen Hughes and Wendy Dickinson, who all spoke at the event. Action for Pulmonary Fibrosis has helped […]
NICE, the National Institute for Health and Care Excellence, has today issued a new quality standard for the care of people who have idiopathic pulmonary fibrosis.