Healthcare at Home is establishing an independent Patient Council to give patients a voice and opportunity to comment on the business’ decision making. This is a great opportunity for you, as a pulmonary fibrosis patient, to have your say.
Action for Pulmonary Fibrosis has signed up to TrekFest 2015 – an exciting and demanding trekking challenge in the Beacons and the Peaks.
Action for Pulmonary Fibrosis awarding travel grants to researchers for American Thoracic Society (ATS) 2015
Action for Pulmonary Fibrosis is pleased to announce that we will be awarding travel grants for researchers attending the American Thoracic Society international conference in May 2015. The ATS is in Denver, Colorado and takes place between May 15th and May 20th 2015.
The first Nottingham Pulmonary Fibrosis support group meeting took place today at Nottingham Forest Football Ground. The event was a huge success with over 100 people attending including our Chairman, Mike Bray and trustees Dr Gisli Jenkins, Karen Hughes and Wendy Dickinson, who all spoke at the event. Action for Pulmonary Fibrosis has helped […]
NICE, the National Institute for Health and Care Excellence, has today issued a new quality standard for the care of people who have idiopathic pulmonary fibrosis.
One of our key charity aims is to help set up new pulmonary fibrosis support groups around the UK so that everyone who needs help can have easy access to it. We have just helped to set up another new support group in Nottingham. This group is run by respiratory nurse Julie Morgan and the inaugural […]
The third autumn “Meet the Experts” event took place at Cookstown, Northern Ireland on Friday, 21st November 2014. This was another successful event presented jointly by Action for Pulmonary Fibrosis and the British Lung Foundation.
Earlier this month, trustee and charity secretary Elizabeth Bray, attended an inspiring international workshop for IPF patients and family members in Brussels. It included patients or relatives from 13 countries, mostly from Europe but also Argentina, Israel, US and Canada.
The first of three ‘Meet The Experts’ events for IPF patients and carers, jointly organised by Action for Pulmonary Fibrosis and the BLF, got off to a flying start in Leeds this week (Monday, November 10th) when more than 75 people attended. The day provided a mix of information and education with plenty of opportunity […]
The Nothern Region IPF support group held two different events of bubble blowing to raise awareness of pulmonary fibrosis during IPF Week last week. The first event was with the residents of Homedowne House where their weekly coffee morning takes place – these residents were aged between 60 and 90.