Earlier this month, trustee and charity secretary Elizabeth Bray, attended an inspiring international workshop for IPF patients and family members in Brussels. It included patients or relatives from 13 countries, mostly from Europe but also Argentina, Israel, US and Canada.
The first of three ‘Meet The Experts’ events for IPF patients and carers, jointly organised by Action for Pulmonary Fibrosis and the BLF, got off to a flying start in Leeds this week (Monday, November 10th) when more than 75 people attended. The day provided a mix of information and education with plenty of opportunity […]
The Nothern Region IPF support group held two different events of bubble blowing to raise awareness of pulmonary fibrosis during IPF Week last week. The first event was with the residents of Homedowne House where their weekly coffee morning takes place – these residents were aged between 60 and 90.
We are pleased to have been able to help set up a new pulmonary fibrosis support group in Oxford. We attended the first meeting last Tuesday, 30th September where around 30 patients and relatives enjoyed getting together, sharing stories and getting support – as well as eating delicious cakes!
Our Chairman, Mike Bray was pleased to present the new IPF Charter to a group including MEPs from across Europe at its launch at the European Parliament in Brussels last Tuesday. Mike spoke of his own experience as a patient and outlined the five points of the Charter in a meeting which also included contributions […]
By Geraldine Burge, ILD Nurse On 28th September the Midlands ILD support group met to raise awareness of Idiopathic Pulmonary Fibrosis for IPF Week. Our group is open to all people affected by all fibrotic lung conditions throughout the Midlands, spanning Hereford, Coventry, Halesowen, Solihull, Warwick and Greater Birmingham.
Janine Hood, a respiratory lead nurse, held a “Raising awareness of Idiopathic Pulmonary Fibrosis’ session in East Lancashire NHS Trust. It was a lunch to enable people to network and two presentations were given from respiratory consultants about diagnosis and treatment for IPF patients.
It’s IPF Week this week and people from all over the country are getting involved and blowing bubbles. Blowing bubbles is the symbol of this year’s IPF World Week – it is to show solidarity and support for those with pulmonary fibrosis and to demonstrate how difficult it can be to draw the breath needed […]
A new pulmonary fibrosis support group was launched last week in Wessex and Action for Pulmonary Fibrosis Chairman, Mike Bray, gave a presentation at the launch which was held at Eastleigh. Mike talked about his experiences as a patient and about the charity aims and hopes for the future.
What a year we have had! We set out early in 2013 to establish Action for Pulmonary Fibrosis as a new charity focusing on idiopathic pulmonary fibrosis with the aims of raising awareness of this devastating disease, helping IPF patients and their families and raising funds for research. By the summer of last year we […]