An IPF researcher at Imperial College, London would like your help if you are an IPF patient. Anne-Marie Russell has developed a patient centred questionnaire specifically for people who have a diagnosis of IPF and is asking for your help with this. All the statements included in the questionnaire have been collected from patients, family / […]
September is Global Pulmonary Fibrosis Awareness month which has been designated by the Pulmonary Fibrosis Foundation and you can get involved and help raise awareness. IPF World Week is also just around the corner – this year it is October 5 – October 11.
Thank you to everyone who took part in our IPF Patient survey this month – we had an excellent response from patients and we are really grateful to you all. About the survey
Action for Pulmonary Fibrosis is conducting a survey of IPF patients and we need your help. Your IPF – patient survey Can you spare 15 minutes to tell us how you and your IPF are being treated by health professionals?
Royal Stoke University Hospital have developed an app for their IPF patients. Its 320 patients will be able to download myIPFcheck onto their mobile devices to tell their consultants detailed changes in their condition including breath or blood test results and drug side-effects.
The JustGiving Awards return this September to give recognition to amazing fundraisers over the past year. Do you want to nominate an Action for Pulmonary Fibrosis fundraiser for the JustGiving 2015 awards? Do you know an amazing fundraiser who deserves recognition?
On May 27 at 2pm ET Canadian Pulmonary Fibrosis Foundation and Ward Health will host an online Q and A on the global burden of Pulmonary Fibrosis. An expert panel of respondents will answer questions about the challenges of: early and accurate diagnosis; current treatment options and the prospects for newer more effective treatments; prevalence […]
The Ribblesdale British Caravanners Club presented a fantastic cheque for £3700 to us at the Manchester IPF Patient Awareness Day last weekend. Allan Lancaster, a former patient of one of our trustees Annette Duck says: “Each year a charity is nominated at the AGM and this year we chose Action for Pulmonary Fibrosis.
Three of our fantastic fundraisers are test running their Toy Story costume at the Silverstone half-marathon on Sunday in their attempt to break a Guinness World Record at the London Marathon for fastest marathon for 3 people within one 3-person costume. Laura Jones is raising money and awareness for Action for Pulmonary Fibrosis in memory of […]
Healthcare at Home is establishing an independent Patient Council to give patients a voice and opportunity to comment on the business’ decision making. This is a great opportunity for you, as a pulmonary fibrosis patient, to have your say.