News

Four specialist care rooms at Nottingham City Hospital sponsored by Action for Pulmonary Fibrosis unveiled for IPF World Week

Mike Bray, chairman of Action for Pulmonary Fibrosis, cut the ribbon to officially open four new specialist care rooms for people with IPF at Nottingham City Hospital this week. The four new APF Supportive Care Rooms on Fleming Ward have been sponsored by Action for Pulmonary Fibrosis and will enable patients to be admitted directly […]

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IPF patient questionnaire – can you help?

An IPF researcher at Imperial College, London would like your help if you are an IPF patient. Anne-Marie Russell has developed a patient centred questionnaire specifically for people who have a diagnosis of IPF and is asking for your help with this. All the statements included in the questionnaire have been collected from patients, family / […]

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September is Global Pulmonary Fibrosis Awareness month

September is Global Pulmonary Fibrosis Awareness month which has been designated by the Pulmonary Fibrosis Foundation and you can get involved and help raise awareness. IPF World Week is also just around the corner – this year it is October 5 – October 11.

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Royal Stoke University Hospital develops IPF app

Royal Stoke University Hospital have developed an app for their IPF patients. Its 320 patients will be able to download myIPFcheck onto their mobile devices to tell their consultants detailed changes in their condition including breath or blood test results and drug side-effects.

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The JustGiving 2015 awards are open for nominations!

The JustGiving Awards return this September to give recognition to amazing fundraisers over the past year. Do you want to nominate an Action for Pulmonary Fibrosis fundraiser for the JustGiving 2015 awards? Do you know an amazing fundraiser who deserves recognition?

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Canada to host Pulmonary Fibrosis Q and A on 27th May

On May 27 at 2pm ET Canadian Pulmonary Fibrosis Foundation and Ward Health will host an online Q and A on the global burden of Pulmonary Fibrosis. An expert panel of respondents will answer questions about the challenges of: early and accurate diagnosis; current treatment options and the prospects for newer more effective treatments; prevalence […]

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Ribblesdale British Caravanners Club raise £3700 for APF

The Ribblesdale British Caravanners Club presented a fantastic cheque for £3700 to us at the Manchester IPF Patient Awareness Day last weekend. Allan Lancaster, a former patient of one of our trustees Annette Duck says: “Each year a charity is nominated at the AGM and this year we chose Action for Pulmonary Fibrosis.

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Guiness World Record Breaking attempt for Woody, Buzz and Jessie for Action for Pulmonary Fibrosis

Three of our fantastic fundraisers are test running their Toy Story costume at the Silverstone half-marathon on Sunday in their attempt to break a Guinness World Record at the London Marathon for fastest marathon for 3 people within one 3-person costume. Laura Jones is raising money and awareness for Action for Pulmonary Fibrosis in memory of […]

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