As part of the FIGHT IPF Campaign, Action for Pulmonary Fibrosis is challenging you to sing a few lines from Rachel Platten’s “Fight Song” then share on social media using #FIGHTIPF #FIGHTSONGchallenge
Action for Pulmonary Fibrosis and Roche have brought together the children and grandchildren of IPF patients to create an inspirational Fight IPF Choir to raise awareness of the disease during IPF World Week.
This year IPF World Week is 17th September to 25th September and you can get involved! How can you get involved? 1. You can hold a fundraising or awareness event – Click here to find out about planning your own event then fill in the agreement form to get access to our online pack.
As part of the charity’s commitment to supporting patients and families affected by IPF, Action for Pulmonary Fibrosis has appointed former respiratory nurse, Lorna McLaughlin as Support Group Co-ordinator.
APF is founding sponsor of new ILD Integrated Network – an organisation for nurses working in ILD care.
APF is proud to announce that it is a founding sponsor of the new ILD-INN, a professional organisation set up to promote excellence and improvements in the care of ILD patients across the UK. Idiopathic Pulmonary Fibrosis is the most common type of interstitial lung disease.
Action for Pulmonary Fibrosis calls for immediate action from NHS England to improve care for patients suffering from IPF
Today Action for Pulmonary Fibrosis met members of the All-Party Parliamentary Respiratory Group and other MPs today to call for immediate action by NHS England to improve care for patients affected by the devastating lung disease Idiopathic Pulmonary Fibrosis and to mandate data collection of people diagnosed with the disease. At the launch in London of […]
Supportive care specialist nurse for respiratory and end-of-life care Shereen Proctor wins Adult Nurse of the Year.
A specialist respiratory nurse from Nottingham has won the Nottingham Evening Post Adult Nurse of the Year Award. Action for Pulmonary Fibrosis worked with Shereen last year to set up new unit on Fleming Ward at Nottingham Hospital which provides dedicated care for respiratory patients.
On 11 April 2016, 16 Members of the European Parliament from 9 EU Member States presented a written declaration “26/2016” on idiopathic pulmonary fibrosis. We hope that the Written Declaration on IPF will help to raise the profile of IPF and ultimately help make lives better for IPF patients and their families. We have contacted our […]
Action for Pulmonary Fibrosis has contributed to ‘Inspiration’ publication, an awareness-raising magazine which was published on Rare Disease Day on February 29th. It features an interview with Action Ambassador, Tony Gowland and APF Trustee, Elizabeth Bray.
Trustee Karen Hughes attends first European Idiopathic Pulmonary Fibrosis Federation meeting in Brussels
Last week Karen Hughes, one of the charity’s trustees, attended the first General Assembly Meeting of the EU-IPFF (European Idiopathic Pulmonary Fibrosis Federation) to represent Action for Pulmonary Fibrosis in the UK. 11 members attended from 9 European countries to discuss the next action to be taken to support and reinforce the points made in the […]