Our trustee Mike Bray attended the workshop on 17 – 19 November which was the latest in a series over the last 3 years. Attendees represented patient organisations from some EU countries but there were others from USA, Canada and Brazil. Mike says “One topic of great interest to everyone was early diagnosis. We heard […]
Our huge thanks go to the wonderful members of the Nottingham Pulmonary Fibrosis Support Group, who have been fundraising for APF in recent weeks and months. Our trustee, Wendy Dickinson, who attends the group regularly, was overwhelmed to receive a (literally!!) bumper cheque for £1,333.96 from Neil Richardson, son of Nottingham group member, Marie Chillery.
We’re asking you to take part in the amazing Santa Run on 4th December 2016 and join us for London’s biggest Santa Run! Limited places available so click here to book now for just £25! We can’t wait for you to pull on your red suit and take part in this festive fundraiser for Action […]
Action for Pulmonary Fibrosis – the voice for patients with Idiopathic Pulmonary Fibrosis (IPF) – is delighted to announce its sponsorship of the first ILD-INN network. The network aims to improve care for patients with interstitial lung disease (ILD). This new network has been established to influence improvement and developments in ILD care across interdisciplinary […]
Earlier this year Action for Pulmonary Fibrosis contributed to the Inspiration Magazine which included interviews with our charity Ambassador and IPF patient Tony Gowland and trustee Elizabeth Bray. A second publication of this magazine has now been released and this issue of Inspiration contains a stark view of the realities of IPF and the challenges that […]
Action for Pulmonary Fibrosis is proud to give a voice to patients with IPF and we now have our own patient council to help us deliver exactly what patients and families need. The inaugural meeting of the APF Voice of the Patient Council was held on the first day of IPF World Week (Sept 17-24) […]
As part of the FIGHT IPF Campaign, Action for Pulmonary Fibrosis is challenging you to sing a few lines from Rachel Platten’s “Fight Song” then share on social media using #FIGHTIPF #FIGHTSONGchallenge
Action for Pulmonary Fibrosis and Roche have brought together the children and grandchildren of IPF patients to create an inspirational Fight IPF Choir to raise awareness of the disease during IPF World Week.
This year IPF World Week is 17th September to 25th September and you can get involved! How can you get involved? 1. You can hold a fundraising or awareness event – Click here to find out about planning your own event then fill in the agreement form to get access to our online pack.
As part of the charity’s commitment to supporting patients and families affected by IPF, Action for Pulmonary Fibrosis has appointed former respiratory nurse, Lorna McLaughlin as Support Group Co-ordinator.