News

Get involved with IPF World Week 2016!

This year IPF World Week is 17th September to 25th September and you can get involved! How can you get involved? 1. You can hold a fundraising or awareness event – Click here to find out about planning your own event then fill in the agreement form to get access to our online pack.

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Action for Pulmonary Fibrosis calls for immediate action from NHS England to improve care for patients suffering from IPF

Today Action for Pulmonary Fibrosis met members of the All-Party Parliamentary Respiratory Group and other MPs today to call for immediate action by NHS England to improve care for patients affected by the devastating lung disease Idiopathic Pulmonary Fibrosis and to mandate data collection of people diagnosed with the disease. At the launch in London of […]

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Written declaration for IPF open for MEPs to sign

On 11 April 2016, 16 Members of the European Parliament from 9 EU Member States presented a written declaration “26/2016” on idiopathic pulmonary fibrosis. We hope that the Written Declaration on  IPF will help to raise the profile of IPF and ultimately help make lives better for IPF patients and their families. We have contacted our […]

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Trustee Karen Hughes attends first European Idiopathic Pulmonary Fibrosis Federation meeting in Brussels

Last week Karen Hughes, one of the charity’s trustees, attended the first General Assembly Meeting of the EU-IPFF (European Idiopathic Pulmonary Fibrosis Federation) to represent Action for Pulmonary Fibrosis in the UK. 11 members attended from 9 European countries to discuss the next action to be taken to support and reinforce the points made in the […]

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