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Free ILD study session for healthcare professionals by Action for Pulmonary Fibrosis

As part of our commitment to educating healthcare professionals Action for Pulmonary Fibrosis is holding a free ILD Study Session for health care professionals tonight in Solihull. Senior Operations Manager Roxane Caplan is opening the meeting and then handing over to experienced ILD Specialist Nurse and former Chair of the ILD INN, Geraldine Burge, who […]

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APF attends the Interstitial Lung Disease (ILD) Registry Steering Group meeting at the BTS Conference

Action for Pulmonary Fibrosis were delighted to be invited by the British Thoracic Society (BTS) this week to take part in the Interstitial Lung Disease (ILD) Registry Steering Group meeting. The Registry provides a means of national data collection encompassing two disease areas: Idiopathic Pulmonary Fibrosis (IPF) and Sarcoidosis. A primary aim of the registry […]

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Tameside Pulmonary Fibrosis Support group launch a huge success

Yesterday saw the launch of the Tameside Pulmonary Fibrosis Support group which has been spearheaded and championed by Clive Green with the support of his wife Sue and his daughter, alongside APF. Action for Pulmonary Fibrosis hosted the meeting and it was a huge success. Lots of local people were there as well as healthcare […]

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Plymouth’s new Pulmonary Fibrosis Support Group get singing training to help with lung capacity

Members of Plymouth’s Pulmonary Fibrosis Support Group recently received training from Devon singing teacher Sandra Smith at the group’s most recent meeting. Patients living with pulmonary fibrosis learnt techniques to help improve their breathing and make the most of their lung capacity. Whilst approaching a singing coach for help and advice might seem unusual, given that some […]

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Louise Dolby takes on The 90 Day garden challenge for IPF

Louise Dolby from Solihull in the West Midlands lost her dad Mike to idiopathic Pulmonary Fibrosis in December 2016. Mike a former UK athletics coach lost his battle with the disease within 3 years and after this tragedy, Louise decided to put her career on hold to spend time with her young daughter as after […]

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Support us on Rare Disease Day 28 February

It’s Rare Disease Day tomorrow, 28 February and we would love you to get involved and show your support for IPF on social media! Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about […]

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Norwich Medical School team recruits 300th IPF patient for drug trial

Congratulations to the Norwich Medical School team for recruiting the 300th patient to the EME-TIPAC trial on treating pulmonary fibrosis with co-trimoxazole (an antibiotic). Norwich Clinical Trials Unit is coordinating the nationwide trial, which is taking place at 43 centres across the UK. The study aims to discover whether taking co-trimoxazole, alongside other treatments, improves […]

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Record turn-out for 50th pulmonary fibrosis support group spearheaded by daughter in memory of her father

Yesterday Northwick Park Hospital in Harrow, North West London, launched a support group for anyone affected by pulmonary fibrosis. This is the 50th patient group in the UK and is supported by the our charity Action for Pulmonary Fibrosis. It was spearheaded at the hospital by Dr Arnab Datta, Consultant Physician in Respiratory Medicine and […]

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Daughter spearheads 50th support group for pulmonary fibrosis in memory of her father

Breathing in and breathing out is the most natural thing in the world, unless you suffer from the devastating lung disease, Pulmonary Fibrosis. It gradually destroys the lungs, making breathing impossible. On Thursday 22 February, Northwick Park Hospital, in Harrow, North-West London, is launching a support group for anyone with or affected by Pulmonary Fibrosis. […]

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APF to award three Travel Fellowships for the American Thoracic Society conference (ATS) May 2018 in California

Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2018 in San Diego, California. The awards of £1000 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher who has had an abstract accepted […]

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