Denbighshire Pulmonary Fibrosis Support Group will be holding their first new support group on 19th June at 1.00pm. The group organiser is Jaime Ashton and can be contacted on 07717 130796 email denbighshirepf@gmail.com Venue: Trefnant Village Hall, Trefnant, Denbighshire LL16 5UG. Anyone affected by Pulmonary Fibrosis is warmly welcome including family, carers and friends. Please […]
Action for Pulmonary Fibrosis is co-operating with the University of East Anglia (UEA) on a research study on Idiopathic Pulmonary Fibrosis. As part of the overall study, there is a PhD research opportunity at UEA to study novel methods of patient recruitment for multi-centre clinical trials. Further information is available at: FindAPhD: https://www.findaphd.com/phds/project/design-and-efficient-conduct-of-multi-centre-trials-in-pulmonary-fibrosis-using-novel-methods-of-patient-recruitment-in-partnership-with-patient-and-public-groups-wilsonu19med/?p109855 Euraxess: https://euraxess.ec.europa.eu/jobs/411048
Action for Pulmonary Fibrosis is organizing a talk on lung transplantation for IPF patients and carers. The talk will be given by Dr Caroline Patterson, consultant transplant physician, Royal Papworth Hospital. The meeting will take place on 6th June (1400-1600) at Haslingfield Village Hall, New Road, Haslingfield, Cambridge CB23 1JP. If you are interested please […]
As a charity we are working hard to get national media coverage. We’re so delighted to be featured in today’s Daily Express raising national awareness of familial IPF and pulmonary fibrosis, it’s not currently available online so pick up a copy today!
Please note that the meeting of the support group at Guy’s Hospital has been brought forward from the 9th May to the 2nd May. This is because of room availability. For further details on the support group click here
Sometimes it can help to hear how others have learnt to live with IPF. Watch the inspiring stories of people living with the disease, including their challenges and triumphs. Produced by Boehringer Ingelheim, enabled by Action for Pulmonary Fibrosis. See the stories here.
Action for Pulmonary Fibrosis has led the largest ever survey of people living with idiopathic pulmonary fibrosis (IPF) – an incurable lung disease which kills 6,000 people each year – in the UK has discovered high levels of misdiagnosis. The report, Giving Patients a Voice has been published today (12 March 2019). What did the report find? More than […]
American Thoracic Society (ATS) Travel Fellowships Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2019 in Dallas, Texas. The awards of £1000 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher […]
It’s #RareDiseaseDay 2019. Contrary to public perception pulmonary fibrosis is not a rare disease. It’s under-resourced, under-recognised and often forgotten. Over 6,000 people are diagnosed a year and numbers are increasing. Read more
Choral Diversity performed a Christmas Concert, and raised a fantastic £900 for Action for Pulmonary Fibrosis. Melissa Hippard has IPF, and her very talented daughter Beth Melling is the founder and musical director of the Hereford and Ludlow based choir Choral Diversity -pictured above. We’d like to thank Beth and all the choir members for […]