Published by: Sabrina Bajwah, Joanna M. Davies, Hanan Tanash, David C. Currow, Adejoke O. Oluyase, Magnus Ekström European Respiratory Journal 2018 52: 1801278; DOI: 10.1183/13993003.01278-2018 Abstract Safety concerns are a barrier to prescribing benzodiazepines (BDZs) and opioids in interstitial lung disease (ILD). We therefore examined the association of BDZs and opioids on risk of admission to […]
Action for Pulmonary Fibrosis was delighted that the British Thoracic Society (BTS) selected Dr Marlies Wijsenbeek of the University of Rotterdam as the first APF speaker at the Interstitial Lung Disease Symposium at its prestigious Winter Meeting on 7th December. Dr Wijsenbeek spoke to an audience of over 200 leading consultants and scientists on “Optimising […]
Harriet Lyons lost her step father, Magnus (Mark) in October this year, five years after a diagnosis of Pulmonary Fibrosis in 2013 followed by cancer in 2017. But Mark battled through, baffling doctors with his enthusiasm, optimism and strength. Harriet has set herself the unenviable task of completing one challenge a month for a year […]
Following the death of a great friend from Pulmonary Fibrosis in November 2017, Camilla Inglis’s’ 14 year old son, Wilfred, painted ‘Chilly Robin’ for her as a memory. Camilla decided to have the painting printed onto Christmas Cards to raise money for APF “it was my friend’s wish that APF would benefit in her memory”. […]
Fiona Craven and the home oxygen team welcome you to their next Pulmonary Fibrosis Support Group meeting on Friday 7th December. Anyone affected by Pulmonary Fibrosis or ILD, their carer’s, family or friends are welcome to attend. For more details please contact Fiona Craven on 07816 064084 or Angela Stoneham on 07825 974097. The meeting […]
Action for Pulmonary Fibrosis (APF) is delighted to support the launch of the Task Force on Lung Health recommendations today at the British Thoracic Society Conference in London. Steve Jones, Chair of APF has ensured the views and and experiences of people living with Pulmonary Fibrosis have been included throughout the year long consultation process and says: […]
Geraldine Burge ILD Specialist Nurse #ILD_INN and Roxane Caplan #ActionPFCharity are in Reading today for the last of this year’s ILD study sessions with the Cardiac and Respiratory Specialist Service Team. #IPF #IPFAwareness
Many of our supporters like to challenge themselves, and some have used this organisation in the past, so we thought we’d pass on this offer from Global Adventure Challenges: Black Friday 2017 was an amazing success with over 150 people signing up to take on a challenge of a lifetime to support a charity close to […]
Congratulations to the Bolton Support group who were featured on Bolton FM last night. Listen online to members of the support group and Lorna the National Support Group Co-ordinator at http://www.boltonfm.com/schedule/wednesday?Listen-Again=1 Bolton FM
APF Chair Steve Jones today presented the findings of the EU-IPFF benchmark study on IPF care across Europe at the European Parliament today. The study highlighted problems of late diagnosis, Lack of access to pulmonary rehabilitation and fragmented palliative care. APF is a founder member of EU-IPFF (the European Federation of IPF patient organisations)