In July 2015, Action for Pulmonary Fibrosis (APF) launched its first patient survey. We wanted to understand the extent to which the NICE Quality Standard was being implemented and benefitting people living with Idiopathic Pulmonary Fibrosis (IPF). More than 300 patients and 18 hospital trusts across the UK participated in the survey. The launch of […]
A rare piece of Nottingham Forest memorabilia donated by the family of former Nottingham Forest and Derby County assistant manager Peter Taylor was presented to the winner of a Fantasy Football League competition today at Derby County’s Pride Park. The competition was set up to raise funds and awareness for Action for Pulmonary Fibrosis, by […]
By Alex Croft, Fundraising & Marketing Co-ordinator All photographs Copyright Kiseki Studio. “We’ve just about recovered from the exhaustion of an absolutely unforgettable weekend at the Great Manchester Run. Thank you to the team on the day Wendy, John, Laura, Lorna, Sam, Stephen, Richard the photographer and Kathleen and Rowan the physios who volunteered to […]
We are delighted to announce that Anne Doran, APF Voice of Patient council member and great advocate for our charity has been nominated for Merseyside Woman of the Year 2018! Anne truly is an inspiration and has been a passionate and committed supporter of Action for Pulmonary Fibrosis for many years. Her daughters Louise and […]
Action for Pulmonary Fibrosis is delighted to have been able to help set up eight new dedicated pulmonary support groups across the UK. We know how valuable these support groups are to both patients and families, for advice, friendship and access to the latest healthcare advice on pulmonary fibrosis. It also allows APF to reach out […]
As part of our commitment to educating healthcare professionals Action for Pulmonary Fibrosis is holding a free ILD Study Session for health care professionals tonight in Solihull. Senior Operations Manager Roxane Caplan is opening the meeting and then handing over to experienced ILD Specialist Nurse and former Chair of the ILD INN, Geraldine Burge, who […]
Action for Pulmonary Fibrosis were delighted to be invited by the British Thoracic Society (BTS) this week to take part in the Interstitial Lung Disease (ILD) Registry Steering Group meeting. The Registry provides a means of national data collection encompassing two disease areas: Idiopathic Pulmonary Fibrosis (IPF) and Sarcoidosis. A primary aim of the registry […]
Yesterday saw the launch of the Tameside Pulmonary Fibrosis Support group which has been spearheaded and championed by Clive Green with the support of his wife Sue and his daughter, alongside APF. Action for Pulmonary Fibrosis hosted the meeting and it was a huge success. Lots of local people were there as well as healthcare […]
Members of Plymouth’s Pulmonary Fibrosis Support Group recently received training from Devon singing teacher Sandra Smith at the group’s most recent meeting. Patients living with pulmonary fibrosis learnt techniques to help improve their breathing and make the most of their lung capacity. Whilst approaching a singing coach for help and advice might seem unusual, given that some […]
Louise Dolby from Solihull in the West Midlands lost her dad Mike to idiopathic Pulmonary Fibrosis in December 2016. Mike a former UK athletics coach lost his battle with the disease within 3 years and after this tragedy, Louise decided to put her career on hold to spend time with her young daughter as after […]