Support Group Newsletter
APF have produced a support group newsletter which has support group news, updates, tips and stories for patients and families. We will be producing two a year.
Specialist ILD centres in England
You may need access to a specialist ILD centre throughout your treatment so it is important to know where these centres are.
NICE Guidelines on IPF
An IPF Guideline for medical professionals was approved in 2013 which sets out how diagnosis should be carried out and the treatment and management of the disease that patients should expect.
NICE IPF Quality Standard 2015
In January 2015, NICE, the National Institute for Health and Care Excellence, issued a new quality standard for the care of people who have idiopathic pulmonary fibrosis.
PDF versions of some of the key sections on our website
Improving care for patients with idiopathic pulmonary fibrosis (IPF) in the UK: a round table discussion
This article is the result of a recent round table discussion held at BMA House chaired by Dr David Thickett. Its purpose was to outline the challenges facing both patients and doctors in managing idiopathic pulmonary fibrosis. A number of recommendations for service development and research have been identified.
You will need to register on the website to access the article.