How to get the ‘Listen To Our Lungs’ Campaign in the press

Action for Pulmonary Fibrosis > Pulmonary Fibrosis Awareness month > How to get the ‘Listen To Our Lungs’ Campaign in the press
  • Research and identify your local & regional media including newspapers, commercial and BBC radio stations and television. Find an email contact for the news desk and email our template press release which you have personalised
  • Include a personal story along with the press release. For this campaign it would be good to find someone in your support group who has experienced late diagnosis.
  • Appoint a spokesperson. As well as identifying someone who can give their personal story appoint a spokesperson who can speak about the wider issues. Use the background facts and figures on Page 7 to build a powerful case. But remember, you don’t have to be an expert. You’re being interviewed because you or your group care about an issue and want to help others.
  • Don’t give up! If you don’t get a response immediately don’t be discouraged. Follow up with a phone call. The media are always busy and if you persevere you will most likely succeed.
  • Think visually. Newspapers need photos as much as they need words. When planning your campaign or fundraising event, think about whether there’s a photo opportunity.
  • Follow up after your event. Don’t forget to post an event update and any photos/footage on social media as well to keep the story going. Online media can be just as effective, if not more so, than traditional media.
  • Write a letter to the editor. If you care about an issue but aren’t able to take part actively in this campaign or organise a fundraising event, you could write a letter to the editor of your local newspaper, giving your opinion. Try and keep your letter to about 200 words and focus on the Listen To Our Lungs campaign using our key messages in this pack.

Finally, let APF know about it! Please email us an update at

  1. Add a photo to your Tweet or Facebook post. Photos get a much better response than
    just text on social media. Click ‘Photo/Video’ on Facebook and the landscape image on
    Twitter and upload photos from your phone or computer.
  2. If you are writing a tweet, add some hashtags. Hashtags are useful as anyone can
    search for them, it ties tweets together, and you have the opportunity to trend.

Social Media

APF’s Facebook and Twitter pages.

Facebook is a great tool for raising awareness with friends and families who may know something or nothing about pulmonary fibrosis. Twitter in particular is used frequently by health care professionals. We’d love it if you could post or tweet from a social media account throughout the month.

If you haven’t used the websites before do use these guides.
https://www.wikihow.com/Post-to-Facebook
https://www.wikihow.com/Tweet

Top tips

  1. Add a photo to your Tweet or Facebook post. Photos get a much better response than just text on social media. Click ‘Photo/Video’ on Facebook and the landscape image on Twitter and upload photos from your phone or computer.
  2. If you are writing a tweet, add some hashtags. Hashtags are useful as anyone can search for them, it ties tweets together, and you have the opportunity to trend.
  3. If you are writing a tweet, remember to “tag” us. You do this by writing “@ActionPFcharity” anywhere in your tweet. This means we can see it too! It gives us the chance to share your tweet with our 2,000 followers.

#PulmonaryFibrosisAwareness
#ListenToOurLungs
#IPFWeek

Thank you for posting on social media. Every post helps us raise awareness of pulmonary fibrosis. Monitoring the ‘Listen to our Lungs’ campaign. We will be tracking the campaign throughout the month and will feedback to you all in October.

Your feedback is essential! Please do update us on your planned activities by emailing ">. We want to celebrate our achievements!

Thank you for posting on social media.
Every post helps us raise awareness of pulmonary fibrosis.