This year IPF World Week is September 15 – 23 and we would love you to get involved and help us raise awareness of pulmonary fibrosis.
IPF World Week was created in 2012 as an initiative to inform people around the globe that Idiopathic Pulmonary Fibrosis (IPF) is a rare and poorly understood chronic and ultimately fatal lung disease. Each year, around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future.
During IPF World Week the entire IPF community come together to raise awareness of this little-known but devastating and fatal lung condition that is poorly understood and often mis-diagnosed.
What can you do to help?
We would love you to hold an awareness-raising/fundraising event during IPF Week (15th – 23rd September)! There are lots of events you can do depending on your interests and skills!
A good place to start is to think about what you enjoy doing? Are you a budding baker who wants to show off your fondant and sugar craft skills? Why not have a coffee morning and sell your tasty treats to your neighbours and friends.
Organise a quiz! All you need to run a quiz is a venue, questions and a good supply of pencils and paper. You can hold one in your own home with friends, at your local pub, at your school or at your workplace.
Party! If you have a birthday, wedding anniversary or other celebration coming up why not ask your friends not to buy presents but to donate to Action instead? You could raise extra money by holding a raffle on the night. No licence is required if the raffle is part of another event, tickets are sold and prizes are drawn on the night and there are no cash prizes.
Sell for Action! Clear out those cupboards! There are lots of items lurking around your home – and the homes of friends, family and neighbours – that could be turned into a great donation for Action. Why not ask friends and family to donate items that you can sell on eBay or sell in a garage sale at your home? Why not collect together the books that are cluttering up your home and take them to a car boot sale.
Eat for Action! Why not hold a vintage afternoon tea in your garden – all the best hotels and restaurants are getting in on the craze for Afternoon Tea – why not join them? Get together some old-fashioned tea sets and table cloths and put on an afternoon with finger sandwiches, cakes and scones. Set out small tables in your garden and turn it into a garden party!
Bake for Action! Thanks to Mary Berry and the Great British Bake-Off, baking is back. Use your skills to bake scones, cakes, pies and tarts to sell – at work, at school, at any local clubs you attend.
What everyone can do as well is Write to your MP! Take a moment to write to your local MP telling them about PF and IPF and asking for them to ensure that research into this disease gets the priority it deserves.