This year IPF World Week is October 5 – 11 and we would love you to get involved and help us raise awareness of pulmonary fibrosis.
IPF World Week was created in 2012 as an initiative to inform people around the globe that Idiopathic Pulmonary Fibrosis (IPF) is a rare and poorly understood chronic and ultimately fatal lung disease. Each year, around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future.
Act for Action in IPF World Week
IPF World Week is a global awareness-raising week during which people all over the world will be spreading the word about IPF.
At Action for Pulmonary Fibrosis we know that many of you want to contribute and feel part of this worldwide community.
IPF Week is about raising the profile of IPF and there is no-one better to do this than you – the patients and families – who know exactly what it means to live with this disease.
We are asking you to Act for Action
That could mean doing something as simple as telling your story to someone who doesn’t know about IPF. You could organise an awareness-raising event in your community or help us communicate the results of our recent patient survey to your local MP and media.
We will support you by providing resources such as fundraising packs, balloons and banners and by giving you any advice or help you need.
How you can Act for Action
Contact your local MP with the results of our IPF Patient Survey (will be provided once we release the report in October).
Record a short message on your phone or device about what IPF means to you starting “Every Breath I Take…” and post and share on social media using the hashtags #ipfweek and #myipfstory during IPF World Week.
Organise an awareness-raising event in your local community such as a bake sale, coffee morning, quiz night, sponsored swim/walk/run.
Tell someone who doesn’t know about IPF your story.