This year, IPF World Week will take place 28 September – 5 October 2014.
Idiopathic Pulmonary Fibrosis World Week was created in 2012 as an initiative to inform people around the globe that Idiopathic Pulmonary Fibrosis (IPF) is a rare and poorly understood chronic and ultimately fatal lung disease. Each year, around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future. The global theme for IPF Week is Breath of Hope symbolising the difficulties in breathing for people with IPF.
We want to make sure that we raise as much awareness and funds as we can during IPF World Week. We will be sending out our first newsletter to all our contacts, spreading the word on Twitter.com/actionpfcharity and making updates on Facebook.com/actionpulmonaryfibrosis. The European IPF Patient Charter will be presented to the European Parliament on 30th September and our Chairman will be there to represent us. We will also keep you updated on our website.
What can you do?
The support from you in invaluable and greatly appreciated by all of us at APF. Do what you can! Have a fundraising event, share your story on Twitter using the hashtag #myipfstory and try to get the message out any way you can.
- 15, 000 people in the UK have the lung disease pulmonary fibrosis.
- It kills 5000 people in the UK each year.
- Median survival from diagnosis is 3 years.
- There is no cure.
September is Global Pulmonary Fibrosis Awareness month
To help raise awareness people are “going blue” for Global Pulmonary Fibrosis Awareness month. All over the world people are doing things like putting a blue streak in their hair, wearing blue clothes every day of the month, face painting their faces blue, posting the word BLUE on their Facebook wall and on Twitter – do anything you can think of!
For more information about Global Pulmonary Fibrosis Awareness month visit www.globalpfawareness.org.