Norfolk and Norwich Pulmonary Fibrosis Support Group
Norfolk & Norwich Pulmonary Fibrosis Support Group
The group was established in January 2014 by Sandra Olive, NNUH Respiratory Nurse Consultant and is part of the Interstitial Lung Disease Service at the hospital. We meet quarterly in the UEA Bob Champion Research & Education building on the Norfolk & Norwich University Hospital site. Meetings are usually attended by upwards of 35-40 people.
Our aim is to give people living with pulmonary fibrosis a place to meet, share experiences and gain information. We are supported at each meeting by nurses from the outpatients team in the Department of Respiratory Medicine and members of Breathe Easy Norwich, a well-established local patient support group, affiliated to the British Lung Foundation, which welcomes anyone coping with any kind of lung condition.
At each of our meetings we have a speaker discussing a topic of interest with time for questions and discussions. There is also social time for a chat over a cup of tea and coffee. We are a friendly group who welcome new members, whether they are directly affected by a lung condition themselves or friends and family.
After each meeting we produce a newsletter so that those unable to attend the meetings have access to the information and news of the group.
Meetings held at:
Speakers for 2019 Meetings
19th January- Dr Kamath, Consultant Respiratory Physician, speaking about Norwich ILD service and Pulmonary Fibrosis.
27th April- Emma Dixon, occupational therapist- practical tips for coping with a long term condition and tips for carers
20th July- Steve Jones, chair of trustees for “Action for Pulmonary Fibrosis”
19th October- Professor Andrew Wilson, Honorary Respiratory Physician, NNUH/UEA
West Norfolk and West Cambs Coffee Group
Meeting venue: Dobies Cafe, c/o Tesco, Hardwick, Kings Lynn
Norfolk and Norwich Support Group Newsletters: