Norfolk and Norwich Pulmonary Fibrosis Support Group
Norfolk & Norwich Pulmonary Fibrosis Support Group
The group was established in January 2014 by Sandra Olive, NNUH Respiratory Nurse Consultant and is part of the Interstitial Lung Disease Service at the hospital. We meet quarterly in the UEA Bob Champion Research & Education building on the Norfolk & Norwich University Hospital site. Meetings are usually attended by upwards of 35-40 people.
Our aim is to give people living with pulmonary fibrosis a place to meet, share experiences and gain information. We are supported at each meeting by nurses from the outpatients team in the Department of Respiratory Medicine and members of Breathe Easy Norwich, a well-established local patient support group, affiliated to the British Lung Foundation, which welcomes anyone coping with any kind of lung condition.
At each of our meetings we have a speaker discussing a topic of interest with time for questions and discussions. There is also social time for a chat over a cup of tea and coffee. We are a friendly group who welcome new members, whether they are directly affected by a lung condition themselves or friends and family.
After each meeting we produce a newsletter so that those unable to attend the meetings have access to the information and news of the group.
Meetings held at:
Speakers for 2018 Meetings
21.7.18- Patsy Martin EXTEND Exercise- Keeping Active and Well (EXTEND is run by qualified teachers trained to make exercise fun and manageable for people who might otherwise struggle with a usual exercise class. Come along and see what it has to offer. Click on the invite below to see full details.)
20.10.18- Kelly Hamer, Respiratory Physiotherapist- Coping with Cough, clearing your chest, dealing with tickly cough and breathing control techniques
Documents to download