Hull and East Yorkshire Support Group
The Hull and East Yorkshire Pulmonary Fibrosis Support Group
The Hull group has been running every 3 months since November 2013.
The aim of the group is to offer support and impart information and news to patients with pulmonary fibrosis, their partners, carers and friends. Topics covered include travelling with IPF, holiday insurance, managing breathlessness at home, new treatments, first aid, yoga, oxygen therapy and support in the community.
Meetings are usually held on a Monday afternoon, 2.00pm-4.00pm every 3 months in the lecture theatre at Castle Hill Hospital, Cottingham, Hull, HU16 5JQS
Each meeting is attended by:
Dr Simon Hart- Lead Respiratory Consultant in IPF
Mark Major- Lead IPF Specialist Nurse
Anne English- Respiratory Physiotherapist
Caty Wood- Complementary Therapist
Caroline Wright- Clinical Trials Manager
We Allow plenty of time for patients to chat to each other, share experiences and ideas. Tea, coffee and biscuits are provided at each meeting. We generally have some money raising event to help support the group and raise money for research.
Please feel free to contact Mark for further information.