We understand how valuable pulmonary fibrosis support groups are to patients and families.

There are many support groups all over the UK, with more being started each year.

Action for Pulmonary Fibrosis > Find a support group

Find a support group near you

Brighton Pulmonary Fibrosis Support Group
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East and North Hertfordshire ILD Support Group
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East Berkshire Pulmonary Fibrosis Support Group
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East Kent Pulmonary Fibrosis Support Group
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East Surrey Pulmonary Fibrosis Support Group
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Guy’s & St Thomas’ Pulmonary Fibrosis Support Group
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Hertfordshire Pulmonary Fibrosis Support Group
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Imperial Pulmonary Fibrosis Support Network
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Luton and Dunstable Pulmonary Fibrosis Support Group
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Northwick Park Pulmonary Fibrosis Patient Support Group
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Oxford Pulmonary Fibrosis Support Group
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Royal Brompton Hospital Support Group
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St George’s ILD Support Group
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Wessex ILD Support Group (WILD)
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West Kent Pulmonary Fibrosis Support Group
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Worthing IPF Support Group
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Bristol Support Group
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Cornwall Pulmonary Fibrosis Support Group (Liskeard)
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Cornwall Pulmonary Fibrosis Support Group (St Austell)
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Exeter Pulmonary Fibrosis Group (EPFG)
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Plymouth Pulmonary Fibrosis Support Group
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Wiltshire Pulmonary Fibrosis Support Group
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Chesterfield Pulmonary Fibrosis Support Group
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Coventry & Warwickshire Pulmonary Fibrosis Support Group
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Derby Pulmonary Fibrosis Support Group
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Gloucester Pulmonary Fibrosis Support Group
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Herefordshire Pulmonary Fibrosis Support Group
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Leicestershire and Rutland Pulmonary Fibrosis Support Group
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Midlands Idiopathic Pulmonary Fibrosis Support Group
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Northamptonshire Pulmonary Fibrosis Support Group
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Nottingham Pulmonary Fibrosis Support Group
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Sutton Coldfield Support Group
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University Hospital of North Midlands Lung Fibrosis Support Group
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West Bromwich Pulmonary Fibrosis Action Group
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Wolverhampton Pulmonary Fibrosis Support Group
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Worcestershire Pulmonary Fibrosis Support Group
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Wyre Forest Pulmonary Fibrosis Support Group
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Bedford Pulmonary Fibrosis Support Group
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Boston Pulmonary Fibrosis Support Group
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Mid Essex Pulmonary Fibrosis Support Group
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Norfolk and Norwich Pulmonary Fibrosis Support Group
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Papworth Hospital Pulmonary Fibrosis Support Group
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Princess Alexandra Hospital Pulmonary Fibrosis Support Group
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Blackpool Pulmonary Fibrosis Action Group
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Bolton Pulmonary Fibrosis Support Group
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Chester Pulmonary Fibrosis Support Group
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Chorley and Preston Lung Fibrosis and Carer Support Group
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East Lancashire Pulmonary Fibrosis Support Group
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Liverpool Lung Fibrosis Support Group
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Manchester Support Group
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Tameside Pulmonary Fibrosis Support Group
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West Cheshire Pulmonary Fibrosis Support Group
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Wirral Pulmonary Fibrosis Patient & Carer Support Group
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Wrightington, Wigan and Leigh Support Group
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Bradford Pulmonary Fibrosis Support Group
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Hull and East Yorkshire Support Group
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Leeds Pulmonary Fibrosis Support Group
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Northern Region IPF Support Group
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Pulmonary Fibrosis Support Group Tees
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Rotherham Pulmonary Fibrosis support group
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Sheffield Pulmonary Fibrosis Support Group
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Wakefield Pulmonary Fibrosis Support Group
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Denbighshire Pulmonary Fibrosis Support Group
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Hywel Dda Pulmonary Fibrosis Support Group
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Hywel Dda Pulmonary Fibrosis Support Group
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Llandough Hospital Pulmonary Fibrosis Patient Support Group
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Pulmonary Fibrosis Wales
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Swansea Pulmonary Fibrosis Support Group
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The Princess of Wales IPF Support Group
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Grampian Pulmonary Fibrosis Support Group
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IPF Support Group Fife and Tayside
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IPF Support Group- Dundee
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The West of Scotland ILD Support Group
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Northern Ireland Pulmonary Fibrosis Support Group
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Western Pulmonary Fibrosis Support Group
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  • London and South East

    • Brighton Pulmonary Fibrosis Support Group

      Emma Rivera

      07387 259261

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    • East and North Hertfordshire ILD Support Group

      Pulmonary Rehabilitation Team

      01462 478783

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    • East Berkshire Pulmonary Fibrosis Support Group

      Robert Dean

      01753 636 466

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    • East Kent Pulmonary Fibrosis Support Group

      Helen Gremo or Becky Bunn

      03001231412

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    • East Surrey Pulmonary Fibrosis Support Group

      Steve Jones

      01954 719329 or 07887 854940

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    • Guy’s & St Thomas’ Pulmonary Fibrosis Support Group

      Wai Lam-Richardson

      02071 888635

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    • Hertfordshire Pulmonary Fibrosis Support Group

      Manisha Cook

      01442 869550

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    • Imperial Pulmonary Fibrosis Support Network

      Jennifer Brimley (ILD Nurse Specialist)

      ILD advice line 020 3312 7553

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    • Luton and Dunstable Pulmonary Fibrosis Support Group

      Lizan Drummond or Peter Bryce

      07710 424746 (Peter Bryce)

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    • Northwick Park Pulmonary Fibrosis Patient Support Group

      Sandeep Sura

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    • Oxford Pulmonary Fibrosis Support Group

      Carmine Ruggiero

      01865 227050

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    • Royal Brompton Hospital Support Group

      Charlotte Hogben

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    • St George’s ILD Support Group

      John Conway

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    • Wessex ILD Support Group (WILD)

      Sophie Fletcher

      023 8120 6228

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    • West Kent Pulmonary Fibrosis Support Group

      Dee and Roger Bryan

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    • Worthing IPF Support Group

      Sharla Elder

      01903 205111 ext. 85859

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  • South West England

  • Midlands

  • East of England

  • North West England

    • Blackpool Pulmonary Fibrosis Action Group

      Fred Bostock

      01253 713496

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    • Bolton Pulmonary Fibrosis Support Group

      Steve Milward

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    • Chorley and Preston Lung Fibrosis and Carer Support Group

      Michael F Godbold MBE JP

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    • East Lancashire Pulmonary Fibrosis Support Group

      Janine Hood

      01282 805514 (Janine/Collete)

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    • Liverpool Lung Fibrosis Support Group

      Meg Kay-Dunkerley (ILD Co-ordinator)

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    • Manchester Support Group

      Dennis Barber

      07949 630388

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    • Tameside Pulmonary Fibrosis Support Group

      Clive and Sue Green

      07533 802620

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    • West Cheshire Pulmonary Fibrosis Support Group

      Caroline Dillon

      07859 898415

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    • Wirral Pulmonary Fibrosis Patient & Carer Support Group

      Suzanne Smith and Kim Verry

      0151 678 5111 (Kim Verry, Respiratory Physiotherapist)

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    • Wrightington, Wigan and Leigh Support Group

      Sandra Dermott- Based at: Royal Albert Edward Infirmary

      01942 264245

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  • North England

    • Hull and East Yorkshire Support Group

      Mark Major

      07769 742 092

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    • Leeds Pulmonary Fibrosis Support Group

      Jane Slough

      01132 067 120

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    • Northern Region IPF Support Group

      Ian Foote

      0191 280 3449

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    • Pulmonary Fibrosis Support Group Tees

      Debbie Hagan and Angela Charlesworth

      07785 307599 or 07785 310164

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    • Rotherham Pulmonary Fibrosis support group

      Tracy Ward

      01709 421700 or 421767

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    • Sheffield Pulmonary Fibrosis Support Group

      Vice Chair- Gordon Harrison

      07826 844035

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    • Wakefield Pulmonary Fibrosis Support Group

      Deborah Wain

      01977 747437

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  • Wales

    • Denbighshire Pulmonary Fibrosis Support Group

      Jaime Ashton (Group Lead)

      07717 130796

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    • Hywel Dda Pulmonary Fibrosis Support Group

      Jennifer Lynch- Wilson

      01226 227391

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    • Hywel Dda Pulmonary Fibrosis Support Group

      Jennifer Lynch- Wilson

      01226 227391

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    • Llandough Hospital Pulmonary Fibrosis Patient Support Group

      Julie Hocking

      029 2071 6419

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    • Pulmonary Fibrosis Wales

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    • Swansea Pulmonary Fibrosis Support Group

      Maggie Crawford

      01792 207662 / Mob: 07841 816720

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    • The Princess of Wales IPF Support Group

      Natalie Murray

      01656 752482/07812 672366

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  • Scotland

  • Northern Ireland

    • Northern Ireland Pulmonary Fibrosis Support Group

      Tom McMillan

      07479 718811

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    • Western Pulmonary Fibrosis Support Group

      Ann Box (respiratory nurse specialist)

      02871 611361

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