IPF patient groups from 10 EU countries came together to develop an IPF Patient Charter which will be presented to the European Parliament in early October.
Action for Pulmonary Fibrosis is part of this group and will be representing UK patients at the Parliament and meeting with UK MEPs who are supporting the Charter.
We encourage you and your friends and family to support the Charter by signing up.
It calls for:
- Early and accurate diagnosis
- Equal access to care
- A holistic approach to standardise IPF management
- Comprehensive and high quality information about the condition
- Better access to palliative care and end-of-life care
Please visit the IPF Patient Charter website to sign up and for more information.