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Action for Pulmonary Fibrosis > News > Support groups

Access to your medicines after Brexit.

Some patients with idiopathic pulmonary fibrosis and their carers have queried the availability of the anti-fibrotic drugs Pirfenidone (made by Roche) and Nintedanib (made by Boehringer Ingelheim) after Brexit.  We contacted both manufacturers who have said that they have been in planning since the result of the EU referendum in 2016.  Both companies have focused […]

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Running in memory of her Gran

Ann Bennett’s eldest grandchild, Rosie May-Bennett, planned to run the Cardiff Half Marathon in aid of APF, a cause clearly close to her family’s hearts. Sadly this ended up being in memory of her gran, but she would be so proud of Rosie’s achievements – completing the half marathon in under 2 hrs and raising […]

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Looking for a new challenge?

29 MARCH 2020 Join the London Landmarks Half Marathon –29 MARCH 2020 –14,000 RUNNERS -ALL CLOSED ROADS The only half marathon to go through both the City of London and City of Westminster which takes in the very best of London’s landmarks. We are so pleased to have secured 25 places to run for Action […]

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Article in the OPEN ACCESS GOVERNMENT October publication

Co-authored by Professor Gisli Jenkins and Steve Jones the article highlights the gravity of the disease but also the massive steps being taken in research to improve diagnosis and treatment. The main challenge facing policymakers, in the years ahead, will be to ensure adequate funding for research on IPF and to pay for costly new […]

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BREAKING NEWS: New treatment for pulmonary fibrosis

Nintedanib, an anti-fibrotic drug used to slow progression of idiopathic pulmonary fibrosis (IPF) has been shown to work for many other types of progressive pulmonary fibrosis. The results of a 15 country clinical trial were announced today at the European Respiratory Society (ERS) Congress in Madrid. Scientists found that lung function for patients who took […]

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European Respiratory Society (ERS) Travel Fellowships

Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ERS International Congress in Madrid, 28th September to 2nd October 2019. The awards of £750 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher who […]

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Pulmonary Fibrosis Awareness Month: September 2019

We need your help. Join our ‘Listen To Our Lungs’ September campaign toraise awareness of pulmonary fibrosis during Global Pulmonary Fibrosis Awareness Month and IPF World Week. I’m Louise Wright, new CEO at Action for Pulmonary Fibrosis (APF) and it’s a pleasure to be in touch and introduce you to APF’s first campaign aimed at […]

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Denbighshire Pulmonary Fibrosis Support Group

Denbighshire Pulmonary Fibrosis Support Group will be holding their first new support group on 19th June at 1.00pm. The group organiser is Jaime Ashton and can be contacted on 07717 130796 email Venue: Trefnant Village Hall, Trefnant, Denbighshire LL16 5UG. Anyone affected by Pulmonary Fibrosis is warmly welcome including family, carers and friends. Please […]

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