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APF Double Page Feature in Daily Express – 30.04.19

As a charity we are working hard to get national media coverage. We’re so delighted to be featured in today’s Daily Express raising national awareness of familial IPF and pulmonary fibrosis, it’s not currently available online so pick up a copy today!

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Life with IPF

Sometimes it can help to hear how others have learnt to live with IPF. Watch the inspiring stories of people living with the disease, including their challenges and triumphs. Produced by Boehringer Ingelheim, enabled by Action for Pulmonary Fibrosis. See the stories here.

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New report exposes misdiagnosis in devastating lung disease: idiopathic pulmonary fibrosis

Action for Pulmonary Fibrosis has led the largest ever survey of people living with idiopathic pulmonary fibrosis (IPF) – an incurable lung disease which kills 6,000 people each year – in the UK has discovered high levels of misdiagnosis. The report, Giving Patients a Voice has been published today (12 March 2019). What did the report find? More than […]

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Invitation to apply for Travel Fellowships to ATS 2019

American Thoracic Society (ATS) Travel Fellowships   Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2019 in Dallas, Texas. The awards of £1000 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher […]

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#RareDiseaseDay

It’s #RareDiseaseDay 2019. Contrary to public perception pulmonary fibrosis is not a rare disease. It’s under-resourced, under-recognised and often forgotten. Over 6,000 people are diagnosed a year and numbers are increasing. Read more  

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Choral Diversity raise £900 for APF

Choral Diversity performed a Christmas Concert, and raised a fantastic £900 for Action for Pulmonary Fibrosis. Melissa Hippard has IPF, and her very talented daughter Beth Melling is the founder and musical director of the Hereford and Ludlow based choir Choral Diversity -pictured above. We’d like to thank Beth and all the choir members for […]

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Harriet Lyons completes Challenge number 2 – Stonehenge Stomp

Quoting Harriet “Well today I completed challenge 2, 40k Stonehenge Stomp! It was exhausting but I did so much better than I thought I would, I managed to run the majority of it apart from the steep hills. I did it in 4hrs 47 mins which I was really pleased with. And the weather didn’t […]

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Royalties from Clough and Taylor book to go to Pulmonary Fibrosis research

Wendy Dickinson and brother Philip Taylor The children of former Nottingham Forest and Derby County legend Peter Taylor have announced they are donating the royalties from the publication of a book written by their father about his career with Brian Clough to medical research.  The book will be available on Thursday 24 January 2019. Peter […]

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