News

Purple and sparkly

9th – 15th December 🎄Purple and Sparkly Week 💜 By wearing something purple and sparkly this Christmas you can raise much needed funds and awareness for APF and people affected by pulmonary fibrosis. Inspired by June who loved colour and sadly passed away from pulmonary fibrosis – her friends are urging everyone to do something purple and […]

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Buy your APF Christmas Card

Action for Pulmonary Fibrosis is delighted to be able to offer a range of three Christmas Cards Thank you to the support of fundraiser Camilla Inglis and her brilliant son Wilf.  “My wonderful friend died from Pulmonary Fibrosis in November 2017, leaving behind her beloved husband and two gorgeous sons.  Their youngest was 11 and […]

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Pulmonary Fibrosis Foundation Summit 2019

Action for Pulmonary Fibrosis (APF) was delighted to attend the Pulmonary Fibrosis Foundation’s 2019 Summit in Texas in November. Our CEO Louise Wright and Chair of Trustees Steve Jones were in attendance. As Louise says “It was an informative and inspiring conference and a chance for collaboration. It was fantastic to see patients and carers […]

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Access to your medicines after Brexit.

Some patients with idiopathic pulmonary fibrosis and their carers have queried the availability of the anti-fibrotic drugs Pirfenidone (made by Roche) and Nintedanib (made by Boehringer Ingelheim) after Brexit.  We contacted both manufacturers who have said that they have been in planning since the result of the EU referendum in 2016.  Both companies have focused […]

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Running in memory of her Gran

Ann Bennett’s eldest grandchild, Rosie May-Bennett, planned to run the Cardiff Half Marathon in aid of APF, a cause clearly close to her family’s hearts. Sadly this ended up being in memory of her gran, but she would be so proud of Rosie’s achievements – completing the half marathon in under 2 hrs and raising […]

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Looking for a new challenge?

29 MARCH 2020 Join the London Landmarks Half Marathon –29 MARCH 2020 –14,000 RUNNERS -ALL CLOSED ROADS The only half marathon to go through both the City of London and City of Westminster which takes in the very best of London’s landmarks. We are so pleased to have secured 25 places to run for Action […]

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Article in the OPEN ACCESS GOVERNMENT October publication

Co-authored by Professor Gisli Jenkins and Steve Jones the article highlights the gravity of the disease but also the massive steps being taken in research to improve diagnosis and treatment. The main challenge facing policymakers, in the years ahead, will be to ensure adequate funding for research on IPF and to pay for costly new […]

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BREAKING NEWS: New treatment for pulmonary fibrosis

Nintedanib, an anti-fibrotic drug used to slow progression of idiopathic pulmonary fibrosis (IPF) has been shown to work for many other types of progressive pulmonary fibrosis. The results of a 15 country clinical trial were announced today at the European Respiratory Society (ERS) Congress in Madrid. Scientists found that lung function for patients who took […]

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European Respiratory Society (ERS) Travel Fellowships

Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ERS International Congress in Madrid, 28th September to 2nd October 2019. The awards of £750 contribute towards costs for conference registration, accommodation and travel. We have three awards available. Applications are now invited from any UK based researcher who […]

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