Pulmonary Fibrosis Foundation Summit 2019
Action for Pulmonary Fibrosis (APF) was delighted to attend the Pulmonary Fibrosis Foundation’s 2019 Summit in Texas in November.
Our CEO Louise Wright and Chair of Trustees Steve Jones were in attendance.
As Louise says “It was an informative and inspiring conference and a chance for collaboration. It was fantastic to see patients and carers are at the heart of the conference”
Steve Jones spoke at the conference. Watch below a series of clips of Steve talking about our fundraisers, researchers, and the work that needs to be done for people living with pulmonary fibrosis.
It is not a rare disease
‘Pulmonary fibrosis is not rare. It’s under-resourced, under-recognised and unheard of.’
Healthcare professionals need more resources
“We’ve got fantastic pulmonologists in the UK who are very committed. But resources are scarce” We need early diagnosis, improved waiting times for treatment and more specialist nurses.
Committing funding to research
“Half of APF’s donations have gone into research.”
Topics include genetics & lung bacteria linked to IPF. Find out more.
Our amazing fundraisers!
Children, grandchildren, and people who have the disease are getting out there cycling, climbing mountains and doing whatever it takes to raise funds and awareness.
We are patient led, and part of an international community
We listen to patients. We are a growing community. Thank you to Pulmonary Fibrosis Foundation who have given us so much support and advice over the years.