Record turn-out for 50th pulmonary fibrosis support group spearheaded by daughter in memory of her father
Yesterday Northwick Park Hospital in Harrow, North West London, launched a support group for anyone affected by pulmonary fibrosis.
This is the 50th patient group in the UK and is supported by the our charity Action for Pulmonary Fibrosis. It was spearheaded at the hospital by Dr Arnab Datta, Consultant Physician in Respiratory Medicine and Sandeep Bansal, a pharmacist. Watford-based Sandeep’s father died of pulmonary fibrosis in 2016.
APF are committed to supporting those affected by pulmonary fibrosis and aim to have 100 groups set up by 2020.
The group launch was a huge success and everyone learned a ot from the various presentations and are looking forward to the next meeting. Speakers at the support group meeting included; Dr Datta, Consultant Physiotherapist Maria Buxton and Steve Jones, Chairman of Action for Pulmonary Fibrosis.
Speaking about her father, Sandeep says:
“The thing we all struggled with most was the lack of awareness of Pulmonary Fibrosis. Having the feeling that you just can’t breathe is enough to frighten even the strongest of people. Dad started to become seriously ill in December 2015, but earlier that year Mum had been diagnosed with stage four breast cancer. When Dad needed around the clock care, Mum did not hesitate. My parents lost their battle within months of each other. We are a Punjabi Sikh family who believe in sharing the good times as well as the sad times. Watching my Mum rise to the challenge has inspired me to take this step. If she was able to help make our Dad’s life better whilst being unwell herself, then surely I can continue her good work”.
Steve Jones from APF says:
“We received an overwhelming response to our 50th support group meeting in Northwick Park. This clearly demonstrates the need for patient support and information. It was an empowering day and we are hugely grateful to Sandeep and the leading health professionals at Northwick Park Hospital for their support. Pulmonary Fibrosis affects all the family and to see the child of a patient so dedicated to helping others affected by the disease is inspiring.”