Patient Information Day a resounding success delivered by APF and Papworth PF support group
Action for Pulmonary Fibrosis’ first Pulmonary Fibrosis Patient Information Day held at Newmarket Racecourse yesterday was voted a resounding success by more than 100 patients and family members who attended.
Organised jointly with the Papworth Hospital PF Support Group it brought together support group members from across East Anglia – Papworth, Bedford, Stevenage, Chelmsford, Norwich and Boston. Presentations on everything from how pulmonary fibrosis is diagnosed and current research to managing the side effects of drug treatment and the value of pulmonary rehabilitation prompted lively discussions and many questions from the audience.
News of APF’s Telephone Support Line was particularly welcomed by patients. ILD nurse, Lucy Rodrigues, who will be answering calls during the initial six month pilot service, explained how it works: “We are currently operating the Support Line as a ‘call back’ service – you call us on 01223 785725, leave a message and we’ll call you back within 24 hours. If we can prove there is a need for this we will be extending the service next year.”
APF Ambassador Wendy Dickinson said: “ A day like today is invaluable for patients and carers. It allows them to learn more about all aspects of the disease from leading experts in a relaxed atmosphere. Just as important is the opportunity it gives everyone to share their personal experiences with people who know exactly how they are feeling.”
Following the success of the Patient Information Day APF will be organising another event later in the year in the north of England.