Papworth Support Group members talk about what it’s really like living with IPF
As part of IPF World Week we want to listen to and learn from patients; about what it is really like living with IPF.
Action for Pulmonary FibrosisPF is recognised as the Voice of the Patient and one of our top priorities is understanding how we can better support those with IPF and their families who are often their carers. We have helped to increased the number of support groups from three in 2013 to 43 in 2017, with many more in the pipeline. More are needed.
The Papworth Support Group have put together this video of patients talking about how they dealt with their IPF diagnosis and how important support groups are. Support groups not only offer practical help and advice, but also emotional support and hope to patients and families.
A huge thank you to Papworth Support Group for putting this video together and allowing us to share.