Our 2017 achievements that you have helped to make happen – thank you!
A Special Thank You
As we approach our 5th birthday and look back at everything we have achieved, we never imagined how much impact we would have and how much support we would receive. We’ve worked together to make a difference to the thousands of people affected by pulmonary fibrosis – patients, families and carers. 2017 has been our busiest and most successful year yet. We couldn’t have done it without you.
Our highlights of 2017
Supporting – We made 58 visits this year!
Creating new support groups is one our top priorities. This year Action for Pulmonary Fibrosis is proud to announce that it has helped set up 11 new support groups in the UK. There are now 46 dedicated pulmonary fibrosis support groups which not only provide emotional and practical support, but also allow us to listen to and learn from patients, families and carers to help us as a charity understand what you need from us and how we can best support you.
Researching – The APF Mike Bray Research Fellowship
In 2017 we announced the APF Mike Bray Research Fellowship. It is a £300,000 grant to fund a major IPF research project and has been raised purely through the commitment and generosity of individual fundraisers and donors. Preliminary applications will be open to UK researchers from January 3rd 2018 and the deadline is 18th February 2018.
Awareness – IPF World Week was a huge success!
We were overwhelmed by your support in IPF World Week this year – you raised over £20,000 and so much awareness of IPF. Our supporters held over 50 fundraising events and shared stories on social media. We held a patient and fundraiser day at the start of IPF Week – it was wonderful to meet our supporters and get to know them. Thank you!
Educating – Healthcare Professionals & Patients
As part of our commitment to education, this year we trained over 350 health professionals on how to diagnose patients with pulmonary fibrosis early and accurately. In 2018 we will significantly expand this programme to reach even more health professionals across primary and secondary care, giving them access to specialists and expert information on how best to care for patients living with pulmonary fibrosis. We also created a new patient leaflet and poster for HCPs to use at hospitals and clinics.
Campaigning – APF visited Westminster for a round table event with patients and patient groups
Chair Steve Jones and Senior Ops Manager Roxane Caplan attended the event which was organised by Roche. It brought together those living with IPF and politicians from all parties to raise awareness of the disease. Maggie Throup MP, whose mother passed away from the illness, hosted the meeting to hear their stories and discuss what action could be taken to improve care and diagnosis.
Voice of the Patient Council – helping us to help you
The Voice of the Patient council is so important to us at APF because patients and families are at the heart of what we do. We had a wonderful day meeting patients and their loved ones as well as some fundraisers at our patient day during IPF Week. The council have also been helping us develop plans this year by giving us important feedback on our support group guide and website.
A date for your diary – The Great Manchester Run, May 20th 2018!
We have an exciting announcement – we have limited places for the Great Manchester Run in 2018 and we will be releasing them in early January. We anticipate huge demand so keep an eye out on our social media pages for the announcement. This is your chance to be part of an incredible day and to run alongside (or perhaps behind!) the great Olympic Gold Medalist Mo Farah who will be taking part!
Some of our fundraisers in 2017!
Thank you from the entire team at Action for Pulmonary Fibrosis. We hope you have had a Happy Christmas and are looking forward to the New Year. We look forward to joining together in 2018 to continue fighting for all those affected by pulmonary fibrosis.
Together we are stronger.