IPF World Week has begun – make sure you’re involved with #UNITE4IPF!
IPF World Week starts today and runs until Sunday 24th September. It is a global awareness raising week where the entire IPF community come together to make a difference to all those who are affected by the devastating lung disease Idiopathic Pulmonary Fibrosis.
What have we got planned?
We have a full week of topics and events for you to look out for starting with the launch of IPF World Week at our Voice of the Patient day today. We will be making an exciting research announcement on Sunday and the following week will be taking part in the global campaign Listen for the Sounds of IPF to fight for early diagnosis of IPF, alongside the rest of the European Idiopathic Pulmonary Fibrosis and Related Disorder Federation (EU-IPFF).
What can you do to help?
If you are holding an event make sure you share your wonderful pictures on social media using the hashtags #UNITE4IPF #IPFWEEK. If it’s on Twitter, be sure to include our handle @actionPFcharity somewhere in the tweet.
Help spread the word on social media – get creative with Facebook frame and camera effects!
Simply go to your profile picture and click “update profile picture” then click on Add Frame. Find our frame by entering the search term “IPF Week”, then select, scale to size and save!
If you’re feeling adventurous then you can also use the frame whilst taking a short video of yourself! You can talk about IPF Week, why you are supporting it and ask people to get involved and share it.
The video feature can only be used on the Facebook app on your phone. Open the app and tap on the camera icon in the top left (or swipe right). Tap the magic wand icon in the bottom left then the frame icon on the bottom right (stick with it almost there!). Then scroll through the frames where you should see the #UNITE4IPF frame. Take your video then save or share!
Add Twitter frame!
We’ve created a temporary Twibbon that you can use for your profile picture on Twitter to help you shout about IPF and raise awareness.
Please support us by clicking on our campaign link here https://twibbon.com/Support/show-your-support-ipfweek and upload your temporary Twibbon (don’t worry you can easily change it back to the original!)! Make sure you include a message of support!
So get talking on social media and help us spread the word – thank you!