Written declaration for IPF open for MEPs to sign
On 11 April 2016, 16 Members of the European Parliament from 9 EU Member States presented a written declaration “26/2016” on idiopathic pulmonary fibrosis.
We hope that the Written Declaration on IPF will help to raise the profile of IPF and ultimately help make lives better for IPF patients and their families. We have contacted our MPs and are calling on them to sign the declaration.
The Written Declaration focuses its recommendations on critical issues for all IPF patients across Europe, namely:
- Investment in research to find the cause(s) of IPF and a cure
- Timely access to treatments, especially once they have received approval by the European Medicines Agency
- Equality for patient in their access to lung transplantation and non-pharmacological treatment
- Better education and recognition of the role of healthcare professionals in IPF care
MEP Elena Gentile has written an artcle on the declaration and IPF. In it she says:
“Through this written declaration, we hope to encourage the European Commission and member states to work together to support timely access to treatment. This way, we seek to address delays in pricing and reimbursement by national bodies and to address inequalities in access to lung transplantation.”