Rare Disease Day – new website and launch of Voice of the Patient blog series
Today is Rare Disease Day – a day where the main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Today we are very proud to launch, as part of our new website, the Voice of the Patient blog and video blog series from charity ambassador Tony Gowland.
Tony is an IPF patient and will be regularly making blogs posts and video posts on our new YouTube channel about his experiences with pulmonary fibrosis.
The “patient’s voice”; listening to patients, hearing what they are going through and what they need is so important to our charity and we hope this series will highlight not only Tony’s voice but all pulmonary fibrosis patients’ voices.