IPF Patient Questionnaire
Are you an IPF patient and would you like to help?
Anne-Marie Russell, an IPF researcher at Imperial College, London has developed a patient centred questionnaire specifically for people who have a diagnosis of IPF and is asking for your help. All the statements included in the questionnaire have been collected from patients, family / friends involved in their care and specialist ILD physicians and nurses.
The deadline for the questionnaire has been extended to 20th December.
150 patients have responded so far but a further 150 are needed in order to complete the study, so please help if you can.
They need as many people as possible to complete this, so that they can analyse the responses, using the most reliable methods. This will help to develop a much shorter and robust questionnaire for use both in research studies and clinical practice to understand the impact of any treatments.
Participation is completely anonymous.
This study is funded by the National Institute for Health Research.
If you require further information about the project contact details for the study team can be found at the beginning of the questionnaire.