IPF patient questionnaire – can you help?
An IPF researcher at Imperial College, London would like your help if you are an IPF patient.
Anne-Marie Russell has developed a patient centred questionnaire specifically for people who have a diagnosis of IPF and is asking for your help with this. All the statements included in the questionnaire have been collected from patients, family / friends involved in their care and specialist ILD physicians and nurses.
Some statements from pre existing questionnaires are also included.
They need as many people as possible to complete this, so that they can analyse the responses, using the most reliable methods. This will help to develop a much shorter and robust questionnaire for use both in research studies and clinical practice to understand the impact of any treatments.
Participation is completely anonymous.
This study is funded by the National Institute for Health Research.
If you require further information about the project contact details for the study team can be found at the beginning of the questionnaire.
Please click on the link below to start the questionnaire: