Four specialist care rooms at Nottingham City Hospital sponsored by Action for Pulmonary Fibrosis unveiled for IPF World Week
Mike Bray, chairman of Action for Pulmonary Fibrosis, cut the ribbon to officially open four new specialist care rooms for people with IPF at Nottingham City Hospital this week.
The four new APF Supportive Care Rooms on Fleming Ward have been sponsored by Action for Pulmonary Fibrosis and will enable patients to be admitted directly to the hospital to receive specialist respiratory care and end-of-life care. The charity has paid for the decoration and furnishing of the rooms, including beds and facilities to allow a partner or family member to remain overnight with a patient during their hospital stay.
IPF, which gradually destroys the lungs making breathing increasingly difficult, is a poorly-understood disease, even within some parts of the medical profession, and the specialist unit will also enable medical staff to learn more about the care and treatment of a disease which kills more than 5,000 people a year – many within three years of diagnosis. The impact of the facility on patient care and treatment will be evaluated in the first year with a view to Action for Pulmonary Fibrosis offering to sponsor similar rooms in other hospitals across the UK.
APF also helped set-up the Nottingham IPF Support Group which was launched in January at Nottingham Forest FC, who supported the group to remember their assistant manager, Peter Taylor, who died from IPF 25 years ago. at the age of 62, on October 4, 1990. Peter’s daughter, Wendy Dickinson, is a trustee of the charity.
APF chairman, Mike Bray, himself a former IPF patient who received a single lung transplant almost five years ago said: “APF is delighted to help set up four supportive care rooms which we hope will have a significant impact on the lives of people with IPF in Nottinghamshire and across the East Midlands. The disease has devastating effects on the patient and their family and having this facility will enable family members to remain close to the patient to provide care and emotional support when they are in hospital.”
Sister Jane Newton, who is running the project, says: “The provision of supportive care rooms within respiratory medicine at NUH and the funding from Action for Pulmonary Fibrosis means we can provide facilities and equipment to offer an improved environment for our patients and their relatives.
Education and training is essential to ensure that our patients receive supportive care specific to their individual needs. Our nurses will be trained in advanced care planning including patient and carer education. To achieve this we have allocated a supportive care nurse to lead the training plan and our IPF specialist nurses Julie Morgan and Sharon Fuller are providing valuable training to nurses and healthcare assistants who work on Fleming Ward.
We have a vision to provide supportive care that has a multidisciplinary approach, to improve the quality of life for both the patient and the family whilst under the care of the respiratory service at NUH.