West Midlands ILD support group raise IPF awareness in Solihull
By Geraldine Burge, ILD Nurse
On 28th September the Midlands ILD support group met to raise awareness of Idiopathic Pulmonary Fibrosis for IPF Week.
Our group is open to all people affected by all fibrotic lung conditions throughout the Midlands, spanning Hereford, Coventry, Halesowen, Solihull, Warwick and Greater Birmingham.
Our group met in Solihull Mell Square and to hand out leaflets to the public and later put the leaflets in GP surgeries. Both patients and carers engaged and shared stories with those that wanted to hear more.
We also joined hundreds of others around the country in blowing bubbles as a sign of solidarity and support for people living with IPF.
IPF, a disease that causes a gradual scarring of the lungs, has been on the rise in the UK for decades, and now kills over 5,000 people a year – more than conditions such as leukaemia.
However, awareness remains low and there is no known cause or cure. As a result, the disease acts with often-devastating speed.
IPF World Week is an opportunity to help raise awareness for this little-known disease and to campaign for more research and better treatment and support for the patients and their families.
We all had a great day and bonded even more closely as a result of this event.
We plan bigger events for next year!