Patient Survey 2018

Help us shape the future of care for IPF patients in the UK. Survey deadline extended.

Thank you once again to all those who have taken the time to complete our 2018 patient survey. With only five days left until the deadline, Action for Pulmonary Fibrosis urges all those who haven’t yet done so to take a few minutes to complete the survey and share their views

  • Fundraise for us!

    Can you support us and do something amazing? You can take part in a fundraising challenge, run a marathon or plan your own event to raise awareness and funds for our charity.

    Get fundraising now!
  • Support groups

    There are many support groups around the UK where you can get help and support and find people who are also dealing with pulmonary fibrosis. Make sure you get the support you need.

    Find a support group
  • Pulmonary Fibrosis Support Line

    We've launched a dedicated support line to help patients and families affected by pulmonary fibrosis - please call us on 01223 785725.

    Read more about the support line

Sign up to receive our newsletter

Never miss our news—sign up to receive our quarterly newsletter and we'll keep you updated about any important announcements, new research and lots of fundraiser stories.

The Mike Bray IPF Research Fellowship

Here's what our fundraisers have been up to!

  • Millie and Alice Wise and friends take on The 3 Peaks Challenge!

    An incredible group of fundraisers have raised £9507 for Action for Pulmonary Fibrosis by taking on The 3 Peaks Challenge! Sisters Alice and Millie Wise along with a group of close friends and family took on the challenge. A huge thanks to the team: Alice Wise, Millie Wise, Harry Biddle, Amy Stoddart, Charlie Truepenny, Joe Taylor, Katie Tyrrell and Lucia Tyrrell!

    "We did the 3 Peaks Challenge for our dad, Jon Wise, who was diagnosed with IPF in 2016. As little is known about the disease, we wanted to raise awareness, as well as raising money for a fantastic charity. We completed the challenge in 23 hours and 53 minutes, through some horrific weather, but it was all worth it!"

    Miliie Wise
  • BreathingSpace team in Rotherham complete the Sheffield 10K

    During IPF week the fantastic BreathingSpace Team in Rotherham completed the Sheffield 10K for APF!

Join our Voice of the Patient Council

If you are a patient in the UK with PF we would like to invite you to join our Voice of the Patient Council

Sign up to the Voice of the Patient Council