Breaking news: giving patients a voice
Action for Pulmonary Fibrosis has led the largest ever survey of people living with idiopathic pulmonary fibrosis (IPF) which has discovered high levels of misdiagnosis. The report, Giving Patients a Voice has just been published.More information
There are many support groups around the UK where you can get help and support and find people who are also dealing with pulmonary fibrosis. Make sure you get the support you need.Find a support group
Call the support line
If you need information or advice on living with pulmonary fibrosis, we are here to help. Please call 01223 785725 and leave a message giving your name and phone number or email us on firstname.lastname@example.org. One of our team of specialist ILD nurses and patient ambassadors will call you back as soon as we can.Call us
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The Mike Bray IPF Research Fellowship
Here's what our fundraisers are up to!
Colclough Brothers at the Manchester Half Marathon
Martin Colclough and his brothers Steve and Dave took on the challenge of running the Manchester Half Marathon on 14th October and, together with their 122 supporters, have raised a staggering £4,545 plus Gift Aid to date – smashing their £3,000 target.
Sadly they lost their dad, Alan, in May of this year – a much loved husband, dad and grandad – to Idiopathic Pulmonary Fibrosis.
Our absolute pleasure to fundraise for the Charity! The work you do is incredible, and a lifeline for those affected by IPF. Running a race and raising money is easy in comparison.Martin Colclough
Katy Gallagher at the Great Scottish 10k Run
Katy Gallagher, Group Accountant with the Veitchi Group, took part with some of her colleagues in The Great Scottish 10k Run at the end of September. Katy’s mum was diagnosed with IPF in 2014 and life thereafter became a daily struggle, eventually becoming bedridden with Katy’s dad taking on the role of full-time carer. Her mum passed away on 1st May this year and Katy says this whole experience has had a devastating affect on the entire family.
Katy nominated APF to be one of The Veitchi Group’s supported charities for 2018.
The work APF is doing for individuals and families affected by IPF is great and I would like to help in any way I can so fewer families go through what we didKaty Gallagher
Join our Voice of the Patient Council
If you are a patient in the UK with PF we would like to invite you to join our Voice of the Patient Council