The patient council is a consultative group of IPF patients who share their knowledge and experience to help other patients and families.
What does it involve?
We are proud to be a charity that listens to patients. If you sign-up to join our patient council you will be able to get your voice heard through our charity.
We will contact you from time to time for your views and experiences of pulmonary fibrosis. It could be about drug treatment, pulmonary rehabilitation or oxygen therapy. We may invite you to various educational or information events or perhaps ask you to take part in a survey about your pulmonary fibrosis. Everything we do is guided by what patients and families need; to know what that is we need you to be part of the discussion. Make sure your voice is heard.
Will this information be confidential?
Yes. Although we need your personal details in order to contact you they will not be shared or passed on to any other organisation. Any views you express will be anonymous, unless you give us permission otherwise.
Please fill out the form below to sign up to become a volunteer on the Voice of the Patient Council.