News

Get involved with Rare Disease Day for IPF!

On Rare Disease Day, 28 February, we would love you to get involved and show your support for IPF on social media! Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases […]

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Action for Pulmonary Fibrosis appoints new trustees and operations manager to its expanding team

Action for Pulmonary Fibrosis – the campaigning voice for patients with this devastating lung disease – has strengthened its management and governance team with the appointment of a Senior Operations Manager and two new trustees who bring their unique experience as patients to the charity. Roxane Caplan joins APF as Operations Manager with extensive management […]

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American Thoracic Society (ATS) Travel Fellowships

Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2017 in Washington, DC on 19-24 May 2017. The awards of £750 contribute towards costs for conference registration, accommodation and travel. We have three awards available.

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Classical singer Emily Estelle donates money from album to Action for Pulmonary Fibrosis

  Classical Singer Emily Estelle, whose father was diagnosed with pulmonary fibrosis is donating £1 from each album sale to Action for Pulmonary Fibrosis. Emily first discovered the condition when her father, John Wetherall was diagnosed with idiopathic pulmonary fibrosis after a year of progressively struggling to breathe. Emily says: “For families with someone suffering from […]

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APF met with the All-Party Parliamentary Respiratory Group 

Action for Pulmonary Fibrosis trustees were at Westminster on December 7th to meet for a second time with Stephen McPartland MP, chair of the All-Party Parliamentary Respiratory Group, to discuss improving care for IPF Patients. The charity presented their report ‘Fit for the Future:Future-Proofing care for patients with IPF’ in the summer to MPs and […]

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Flying high for Mum and APF – Nottingham IPF support group fundraise for APF

Our huge thanks go to the wonderful members of the Nottingham Pulmonary Fibrosis Support Group, who have been fundraising for APF in recent weeks and months. Our trustee, Wendy Dickinson, who attends the group regularly, was overwhelmed to receive a (literally!!) bumper cheque for £1,333.96 from Neil Richardson, son of Nottingham group member, Marie Chillery.

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