In memory of Des Tibbins, his family took on the challenge of climbing Mount Snowdon on the 28.07.18. They said “in memory of our beloved Husband/Dad/Grandad who recently, sadly passed away to this terrible disease – Idiopathic Pulmonary Fibrosis. Maureen ( wife ) John & Laura (son & daughter) sue (daughter in law) and grandchildren […]
Action for Pulmonary Fibrosis supporter Terry Holder from Dunstable was interviewed today by Channel 4 journalist Victoria Macdonald for a news item on NICE’s policy on antifibrotic drugs. The interview will be shown on Channel 4 News on Thursday evening 2nd August.
APF Is delighted to announce that our Chair, Steve Jones, has been elected to the Executive-Board of the European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF). The EU-IPFF is made up of 17 patient organisations from 13 European countries and is the first such pan-European organisation. It aims to improve the quality of life […]
Members of the Leicestershire and Rutland PF Support Group are out in force today raising awareness at a Wellness Event at Ulverscroft Manor in Markfield, Leicestershire. APF Ambassador Wendy Dickinson is helping on the stall and said: ” The group, which meets at Ulverscroft, is thriving but they are keen to attract new members and […]
Our chairman Steve Jones and Howard Almond one of our Trustees attended the 2018 General Assembly of EU-IPFF. The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF) brings together European national patient associations committed to defending their vision of equal access to treatment and care for all IPF patients, regardless of geography, socio-economic status […]
APF Chair, Steve Jones, was pleased to talk at the launch of the East Surrey Pulmonary Fibrosis Support Group in Reigate. Group organiser Bonnie Koo from East Surrey Hospital was delighted with the turnout. The next meeting in September will be advertised in the APF website.
Action for Pulmonary Fibrosis’ first Pulmonary Fibrosis Patient Information Day held at Newmarket Racecourse yesterday was voted a resounding success by more than 100 patients and family members who attended. Organised jointly with the Papworth Hospital PF Support Group it brought together support group members from across East Anglia – Papworth, Bedford, Stevenage, Chelmsford, Norwich […]
Today we are pleased to announce the launch of our pulmonary fibrosis support line. The support line is for patients and carers and will be run by specialist ILD nurses and charity ambassadors who are there to help you when you need it. We decided to launch a support line because we know having pulmonary […]
In July 2015, Action for Pulmonary Fibrosis (APF) launched its first patient survey. We wanted to understand the extent to which the NICE Quality Standard was being implemented and benefitting people living with Idiopathic Pulmonary Fibrosis (IPF). More than 300 patients and 18 hospital trusts across the UK participated in the survey. The launch of […]
Rare Nottingham Forest memorabilia won by Derby County fan in competition held to raise awareness of pulmonary fibrosis
A rare piece of Nottingham Forest memorabilia donated by the family of former Nottingham Forest and Derby County assistant manager Peter Taylor was presented to the winner of a Fantasy Football League competition today at Derby County’s Pride Park. The competition was set up to raise funds and awareness for Action for Pulmonary Fibrosis, by […]