News

In memory of Desmondo – fundraising – #ActionPFcharity

In memory of Des Tibbins, his family took on the challenge of climbing Mount Snowdon on the 28.07.18. They said “in memory of our beloved Husband/Dad/Grandad who recently, sadly passed away to this terrible disease – Idiopathic Pulmonary Fibrosis. Maureen ( wife ) John & Laura (son & daughter) sue (daughter in law) and grandchildren […]

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Channel 4 News Item on the NICE 80/50 rule

Action for Pulmonary Fibrosis supporter Terry Holder from Dunstable was interviewed today by Channel 4 journalist Victoria Macdonald for a news item on NICE’s policy on antifibrotic drugs. The interview  will be shown on Channel 4 News on Thursday evening 2nd August.  

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APF on Executive Board of EU-IPFF – APF in Europe

APF Is delighted to announce that our Chair, Steve Jones, has been elected to the Executive-Board of the European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF). The EU-IPFF is made up of 17 patient organisations from 13 European countries and is the first such pan-European organisation. It aims to improve the quality of life […]

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Leicester and Rutland Support group

Members of the Leicestershire and Rutland PF Support Group are out in force today raising awareness at a Wellness Event at Ulverscroft Manor in Markfield, Leicestershire. APF Ambassador Wendy Dickinson is helping on the stall and said: ” The group, which meets at Ulverscroft, is thriving but they are keen to attract new members and […]

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EU-IPFF General Assembly – Action PF in Vienna

Our chairman Steve Jones and Howard Almond one of our Trustees attended the 2018 General Assembly of EU-IPFF. The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF) brings together European national patient associations committed to defending their vision of equal access to treatment and care for all IPF patients, regardless of geography, socio-economic status […]

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East Surrey Support group in Reigate

APF Chair, Steve Jones, was pleased to talk at the launch of the East Surrey Pulmonary Fibrosis Support Group in Reigate. Group organiser Bonnie Koo from East Surrey Hospital was delighted with the turnout. The next meeting in September will be advertised in the APF website.

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Patient Information Day a resounding success delivered by APF and Papworth PF support group

Action for Pulmonary Fibrosis’ first Pulmonary Fibrosis Patient Information Day held at Newmarket Racecourse yesterday was voted a resounding success by more than 100 patients and family members who attended. Organised jointly with the Papworth Hospital PF Support Group it brought together support group members from across East Anglia – Papworth, Bedford, Stevenage, Chelmsford, Norwich […]

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Rare Nottingham Forest memorabilia won by Derby County fan in competition held to raise awareness of pulmonary fibrosis

A rare piece of Nottingham Forest memorabilia donated by the family of former Nottingham Forest and Derby County assistant manager Peter Taylor was presented to the winner of a Fantasy Football League competition today at Derby County’s Pride Park. The competition was set up to raise funds and awareness for Action for Pulmonary Fibrosis, by […]

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