News

Patient Information Day. Monday 22nd October. Holiday Inn, Doncaster

Yorkshire Patient Information Day Monday 22nd October Holiday Inn Doncaster A1 (M), Jct.36   PROGRAMME   1000 Registration and coffee Opening Session 1030 Welcome Steve Jones, Chair APF 1040 Patient stories   Understanding Pulmonary Fibrosis 1100 What is pulmonary fibrosis? Simon Hart, Hull 1130 How is pulmonary fibrosis diagnosed and monitored? Paul Beirne, Leeds 12.00 […]

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Sarah ran the Cardiff Half Marathon

Sarah Messer, the daughter of former Newport GP Dr Denis Morgan who died of Idiopathic Pulmonary Fibrosis in 2017, ran the Cardiff Half Marathon last weekend in his memory. It was her first half marathon and she has so far raised the staggering amount of £2540 for Action for Pulmonary Fibrosis. The funds are in aid […]

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Wiltshire Support Group launch

The Wiltshire Pulmonary Fibrosis Support Group are having their first meeting on 12th October. Patients, relatives, friends and carers all welcome. At their first meeting there will be a talk on breathlessness and anxiety management presented by the Respiratory Occupational Therapist. The meeting will be held at Chippenham Community Hospital in the Wessex Room between […]

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IPF and Wyre Forest Support Group on BBC Hereford and Worcester Radio

Wyre Forest PF Support Group organiser Elaine Ball will be interviewed live by the Double Sony award winning radio broadcaster Malcolm Boyden on BBC Hereford and Worcester on Tuesday 16th   October at 11.00am. Raising awareness of the effects of Pulmonary Fibrosis and announcing the new Wyre Forest Pulmonary Fibrosis Support Group on 23rd October. Listen […]

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Groups continue to raise awareness with their local MPs

Local Labour MP for Ashton- Under- Lyne, Angela Rayner, dropped in to visit the Tameside PF Support Group at their last meeting. Clive Green, the group organiser, met Angela whilst she was doing her door to door canvassing in spring and he asked her to drop in and visit the group. Well, she kept to […]

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ILD/INN Annual Conference in Birmingham

APF Chair, Steve Jones is delighted to be talking at the ILD/INN annual conference in Birmingham today about the Challenges  facing the ILD Community. Photo – Steve with ILD/INN Chair Anne-Marie Russell

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Drugs leaflets for Pirfenidone and Nintedanib

Two new drugs leaflets have been produced by the ILD-INN in conjunction with Action for Pulmonary Fibrosis designed for both medical professionals and patients. The leaflets have been written to help you understand more about the drugs. They will tell you what they are, how they work, how they are used to treat lung conditions […]

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Pulmonary Fibrosis Clinical Trials directory – IPF, PF, EU-IPFF

CLINICAL TRIAL FINDER. Just released, as part of our work with the EU-IPFF we are pleased to announce that there is now an easy to use guide to see what clinical trials are available worldwide. The route to these trials will be via your consultant, you must discuss all aspects of your participation or interest […]

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