On Rare Disease Day, 28 February, we would love you to get involved and show your support for IPF on social media! Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases […]
Action for Pulmonary Fibrosis – the campaigning voice for patients with this devastating lung disease – has strengthened its management and governance team with the appointment of a Senior Operations Manager and two new trustees who bring their unique experience as patients to the charity. Roxane Caplan joins APF as Operations Manager with extensive management […]
It is with great sadness that we have to report the death of Mike Bray, founder of Action for Pulmonary Fibrosis and chairman for the first three years of the charity’s life. Mike – an IPF patient who received a single lung transplant six years ago – died suddenly after a short illness on January […]
Royal Brompton & Harefield NHS Trust have launched a new series of research podcasts that aim to shine a light on research at the Trust and the first in the series features Dr Toby Maher talking about IPF. In the first podcast Dr Maher explores recent research into home monitoring for IPF and how this […]
Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2017 in Washington, DC on 19-24 May 2017. The awards of £750 contribute towards costs for conference registration, accommodation and travel. We have three awards available.
Classical Singer Emily Estelle, whose father was diagnosed with pulmonary fibrosis is donating £1 from each album sale to Action for Pulmonary Fibrosis. Emily first discovered the condition when her father, John Wetherall was diagnosed with idiopathic pulmonary fibrosis after a year of progressively struggling to breathe. Emily says: “For families with someone suffering from […]
Action for Pulmonary Fibrosis trustees were at Westminster on December 7th to meet for a second time with Stephen McPartland MP, chair of the All-Party Parliamentary Respiratory Group, to discuss improving care for IPF Patients. The charity presented their report ‘Fit for the Future:Future-Proofing care for patients with IPF’ in the summer to MPs and […]
Our trustee Mike Bray attended the workshop on 17 – 19 November which was the latest in a series over the last 3 years. Attendees represented patient organisations from some EU countries but there were others from USA, Canada and Brazil. Mike says “One topic of great interest to everyone was early diagnosis. We heard […]
Our huge thanks go to the wonderful members of the Nottingham Pulmonary Fibrosis Support Group, who have been fundraising for APF in recent weeks and months. Our trustee, Wendy Dickinson, who attends the group regularly, was overwhelmed to receive a (literally!!) bumper cheque for £1,333.96 from Neil Richardson, son of Nottingham group member, Marie Chillery.
We’re asking you to take part in the amazing Santa Run on 4th December 2016 and join us for London’s biggest Santa Run! Limited places available so click here to book now for just £25! We can’t wait for you to pull on your red suit and take part in this festive fundraiser for Action […]