Trustee Wendy Dickinson attends Nottingham support group and highlights just how important they are for patients and families
“I’ve been going to the Nottingham Pulmonary Fibrosis Support Group since the charity helped set it up just over three years ago. I go as a trustee of APF but also as a family member to get support.
My dad, Peter Taylor, died from IPF in 1990. Such a long time ago but still such a sharp pain. Dad was ‘the other half’ of the famous Clough-Taylor footballing partnership and we held the first meeting of the new group at Nottingham Forest’s City Ground, where dad and Brian won two European Cups. It was a great event and the group is still going strong. Attending really helps me and it is a privilege to meet the fantastic people who attend, all at different stages of the disease.
As well as patients we have partners, people who have lost a loved one to the disease and sons and daughters, like me. In fact, one daughter, Jacqueline, bought her dad for the first time yesterday and walked away with a huge Marks & Spencer Easter egg and a large Lindt Bunny in the raffle so she was well pleased! We had such a laugh yesterday with lots of chat, a raffle and a quiz. Everyone was in good spirits and, I think, went home in a more positive mood. We’ve arranged an Afternoon Tea for June and a boat trip later in the summer.
The group was set up and has always been run by respiratory nurse, Julie Morgan. Julie has now retired but is still involved in running the group. Last meeting we decided to form a committee and that is up and running with Julie as chair. We’ve also set up a bank account.
If you’d like advice on setting up a group or on organising a committee to run your group please get in touch with our Support Group co-ordinator, Lorna MacLauchlan, firstname.lastname@example.org or telephone 07914 426269.”