Action for Pulmonary Fibrosis are delighted to announce that they have elected a new Chair, Steve Jones
Action for Pulmonary Fibrosis are delighted to announce that they have elected a new Chair, Steve Jones, who joined APF as a trustee in January.
Steve joined APF as a trustee in January and is lead trustee for support group development.
I am delighted to have been elected as the new chair of Action for Pulmonary Fibrosis. After an amazing first few years, we are now able to scale up our support to people living with pulmonary fibrosis. Over the next few years, we hope to double the number of support groups in the UK, expand nurse training to improve early diagnosis of the disease and continue campaigning for improved care under the NHS for people living with the disease. We will also launch a major three-year research project into the causes and treatments of IPF, and smaller research projects.
None of this would be possible without the incredible efforts of you – our supporters, our fundraisers, and the dedicated APF team. I lived with IPF for 8 years but was fortunate to receive a lung transplant in last year. I now want to dedicate my time to working with you all improve the lives of patients and their family members living with the disease now and in the future.
APF would also like to thank most warmly our outgoing Chair, Karen Hughes for all her hard work and commitment to the charity and to those affected by IPF.
Karen’s highlights and achievements include presenting the patient study “Fit for the future: Future-proofing care for patients with IPF” to the All Party Parliamentary Respiratory Group for Health in Westminster, attending the first support group in Swansea, the home town of Karen’s father – an PF patient – where some support group members remembered him locally and attending the inaugural meeting of the EU-IPFF meeting in Brussels where APF then became a founding member of its General Assembly – and taking the case for equality of IPF patient rights to the European Parliament.
It has been a privilege and an honour to be a trustee of Action for Pulmonary Fibrosis and to serve as Chair for the last of those three years. I have been lucky enough to have been a part of a tremendous period of growth and success. The team at APF is energetic, creative and highly-driven in their determination to support the lives of PF patients and families everywhere and to improve expectations for the patients of the future.
We enjoyed many memorable moments of celebration along the way. I am delighted now to hand over to Steve Jones who is an IPF transplant patient and powerful advocate for the charity. Thanks and good luck to you all.