Our vision: A world in which everyone living with pulmonary fibrosis has a better future

With your help we can make this happen

Join our Voice of the Patient Council

If you are a patient with IPF we would like to invite you to join our Voice of the Patient Council

Sign up to the Voice of the Patient Council
  • Support groups

    There are many support groups around the UK where you can get help and support and find people who are also dealing with pulmonary fibrosis. Make sure you get the support you need.

    Find a support group
  • IPF Patient Survey Report

    We conducted the most comprehensive national study to date into the effectiveness and reach of the NICE Quality Standard across the UK IPF patient population.

    Read more about the IPF Patient Survey
  • Fundraise for us!

    You can do something amazing! You can take part in a fundraising challenge, run a marathon or plan your own event to raise awareness and funds for our charity.

    Get fundraising now!

Voice of the Patient

Tony Gowland, an ambassador for Action for Pulmonary Fibrosis and a pulmonary fibrosis patient, talks about his experiences with IPF.

Here's what our fundraisers have been up to!

  • Oly Whelan‎ – Six Tough Mudder challenges!

    Oly Whelan, one of our first ever fundraisers, has completed 6 Tough Mudder challenges!

    Oly is doing it for his Dad Paul and his Uncle Doug who had IPF and died recently so that they can find a cure for his generation.

    Six out of six done. Thanks for my Action for Pulmonary Fibrosis t-shirt. Don't think it will ever be white again!

    Oly Whelan
  • Louise Doran – charity musical and quiz night

    A huge thank you to a fantastic fundraiser Louise Doran for putting on an amazing musical and quiz evening in Liverpool.

    Louise worked so hard in organising the event and £1,554.00 was raised for Action for Pulmonary Fibrosis and everyone enjoyed Danny King of Swing! Thank you!

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